Its been a wild week.\u00a0 Chloe’s Dr. and I were able to connect via phone after some ‘tagging you’re it” play to ultimately reduce the amount of nutrition feeds from about 2 1\/2 cans per night to less than 2.\u00a0 Also Chloe began taking a daily dose of an appetite stimulant(did I actually see her eat TWO slices of pizza tonight back to back?).\u00a0\u00a0 She and I just changed her ‘face tapes’ which is a source of discomfort.\u00a0 Wow, that skin is pink under the tape.\u00a0 We attached a smaller piece this evening.\u00a0<\/p>\n
Last night two “wish granters’ arrived from Make -a-Wish foundation to discuss with Chloe, her wish.\u00a0 One wish granter is Miss Oregon and the other , it was her first expereience which is just as exciting! \u00a0What a great team they make!\u00a0 Indeed Chloe’s wish\u00a0is to\u00a0attend the film premiere of the next Harry Potter movie and to meet …..Harry! (I keep telling her J.K. Rowling is the real Harry which Chloe loves)\u00a0<\/p>\n
She also had to decide upon an alternate wish.\u00a0 Its a Jack Russell Terrier puppy.\u00a0 I must admit she needed to sway me some.\u00a0 My next dog dream was to find a Collie puppy…..so okay….another “jack” for chloes continued healing seems more than fair in the scheme of that which was NOT fair last summer as well as the last four years of illness.\u00a0<\/p>\n
Tonight was ‘Pizza night” at school, an outdoor evening for parents\/kids\/teachers to re-connect.\u00a0 We saw so many who have kept her so close in thoughts all these months.\u00a0 I particularly enjoyed seeing one of her anesthisiologists whose daughter is Chloes friend.\u00a0 He was amazed to see her eating so much pizza!\u00a0 Everyone wonders about the tube and WHEN about the tube.\u00a0 Being close (to having the tube out) is a good feeling.\u00a0 Her doctors dont want her to lose weight again.\u00a0 No more sliding EXCEPT for slides!<\/p>\n
It was fun for Colin to see many of his former teachers tonight as well.\u00a0 He’s excited about this school year and being in a singing group called “Panache’ is making a difference.\u00a0 He had to be at school an hour early for practice this morning.\u00a0 Now I’m learning he’ll be practicing at MT. Hood November 1 and 2.\u00a0 Wow, that puts my school experiences to shame!\u00a0 Woo-hoo I say!\u00a0 Yay for all those\u00a0who make kids lives so much better than we had it.\u00a0 Especially those who teach WHILE putting the kids inside an adventure<\/p>\n
Guess thats why Harry Potter isnt just a wish, or a dream…..its an adventure.\u00a0 May it come to be.<\/p>\n
Chloe says ‘ok yeah”(go to print mama)<\/p>\n
dana<\/p>\n","protected":false},"excerpt":{"rendered":"
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