There has been some confusion caused by an old automatic message that goes out anytime you send an email to Contact Chloe. This message said Chloe was home. That was from last time she was in the hospital, 2008. The blog is still the most current information and we certainly apologize for those of you who received that bogus email.<\/p>\n
Sunday is supposed to be a day of rest\u2026 but I guess not for Chloe. She had a restful night last night but about 5:30 am the agitation began. This is good and bad as I\u2019ll explain in awhile.<\/p>\n
She is mad, very, very mad. She didn\u2019t sign up for all this and can\u2019t figure out why she has to go through it all. I can\u2019t begin to imagine how frustrated she is. She went into surgery as a normal 10-year-old happy girl. She didn\u2019t have any symptoms and took us at our word that she needed the surgery. But she also thought it would be no different than last time. A day or two in PICU and then out to the third floor and home in a couple weeks was what she expected. The surgery Was Indeed Needed but she will only believe that when she is up and about.<\/p>\n
Never in our wildest dreams did we foresee the Ventilator and Partial Paralysis. But that\u2019s what we are facing. She can move her left arm and leg pretty well and she flails around in complete frustration. Her eyelids are getting better and so is her vision. She can now hold her eyelids open for a longer period of time and I didn\u2019t notice the eye shake of the last few days.<\/p>\n
Dr. Dorsen came in this morning to see her and was very impressed with her movement. He sees as I do, a complete recovery in her future. She is still in one heck of a mess but I\u2019ve seen improvements that just help me believe even deeper that we are going in the right direction.<\/p>\n
Dr. Dorsen also thought the anger was a good thing. It gives her some movement but it also shows she wants to get on with it, now, not later.<\/p>\n
All day she had blood pressure problems so they medicated for that. When I arrived at the hospital around 8:30 pm she was resting well. About 10 pm they ended up waking her for some regular maintenance. From then on she was back in mad mode. We just couldn\u2019t make anything work for her. She doesn\u2019t want anything we ask if she wants. She just wants the tubes out of her and to get out of bed.<\/p>\n
Colin was finally able to come in to see her today. Even though he was prepped for what to expect he took on a look of complete shock when he saw her. He didn\u2019t even feel he could get close to her. We know he\u2019s very wrapped up in his sister even though he may not say it. The reality seemed to be just a bit much for him.<\/p>\n
Tomorrow will be a full day for Chloe. She will see all the PTs and will have a workout. I don\u2019t expect her mood to be any better after all that but, at least, she will be working her limbs. She was able to move her right side some today. That\u2019s another indicator to me that she is going in the right direction.<\/p>\n
It\u2019s 2:30 am so I\u2019ll keep this update short.. and I\u2019m sure I\u2019m forgetting some things. The main thing is that Chloe is a fighter. She is fighting everyone and everything. I say, Go For It Girl! The doctors can only do so much. Chloe is still in charge.<\/p>\n
By the way\u2026 if you were on the receiving end of my teeth today please accept my apology. I\u2019m hanging on by a thread as are the rest of the team members. My fangs came out way too quick today.<\/p>\n
Blessings,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
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