Today was one fairly hard to describe. Chloe says that if the days are rated #1 as the best and #10 the worst, this was a #8 day. Sandy met Dana this morning, mouthing the words, \u201cSad, very, very sad.\u201d She did have a restful night however, the rest of the day has been just a somber awakness. <\/p>\n
The peak parts of the day were when she received pep talks from the doctors. It seems they carry more weight that we parents who, she may feel, are just saying things to make her feel better but without much truth to the talk. Dr. Dorsen\u2019s right hand man, Tony, did a fantastic job explaining the rewiring process of the brain and nerves after the delicate brain was disturbed. Dana says she was very attentive to all he said. <\/p>\n
They set Chloe up with a hand call button instead of the thumb press button. It is much easier for her to push and is very sensitive to the touch. She was able to use it three times last night. She probably loved the new responsibility.<\/p>\n
Dr. Maya Hunter stopped by to deliver a card and a spiny blue ball, from her great friend Michiko, that is made of material that grossly resembles a reluctant bugger. In fact, I named if for Chloe, and she loves the name,\u2026 the bugger yoyo. It can bounce like one of those paddles with a rubber band and ball or she can squeeze it and it blows a bubble out of the interior that resembles a\u2026 you got it\u2026 a bugger bubble. She was bouncing it really hard and it slipped from her hand, bounced off the wall behind her bed and retreated under the bed. Her expression was priceless when she tried to follow its flight. Then she smiled wide and long. It was a great silent laugh. In a day that had been so sad this was wonderful to see. BTW\u2026 Dana asked me not to refer to the blue ball as a bugger yoyo so will the readers please disregard the previous reference to the blue ball as the bugger yoyo.<\/p>\n
Sandy was awake and available so Dana and I planned a short getaway to her house for a cleanup and wind down from a hard 11 days. Dave was here to visit with Chloe so we took Colin and went to the house where Dana was able to finally spend some time in the tub and we were able to eat something other than hospital food. The lemon chicken and mashed potatoes was perfect. And Colin got a look at the new paint job in his room that he thinks is very cool. Thank you neighbors. <\/p>\n
Make-a-Wish dropped a few pick-me-ups off while we were gone. They never cease to amaze me with their devotion to their kids. It\u2019s been wonderful being associated with all of the volunteers.<\/p>\n
During the day Chloe has been getting cough assist procedures. This is a process of giving her a shot of air in her lungs and then the tech does a quick suction to get any of the gunk that passes where it shouldn\u2019t. Yesterday the culture they examined showed a low-grade infection so they now have Chloe on antibiotics in order to stay ahead of the problem. They call it a low-grade infection but any grade in her condition is, as far as I\u2019m concerned, a major situation that needs immediate and intensive action taken. We still plan on bringing a perfectly health little girl home with us in the shortest possible timeframe. As it is now we should be graduated to the third floor by the end of the week. If her vocal cords would wake up by then I\u2019d call the week perfect! They are the key to everything.<\/p>\n
Sandy is finally going to take a break tomorrow and go back to Canada and try and salvage a mess at her job. She has been amazing with her overnight caregiver shift. I\u2019m on call now for that shift if we need it to happen. Dana is still the #1 person on this team. <\/p>\n
It\u2019s 9 pm now and Chloe is finally getting a bit tired. She will have one more cough assist at 10 pm and then will be given a little something to help her sleep the night. The eyes in this chair are essential when she is asleep as she doesn\u2019t have a voice and her coordination isn\u2019t good when she\u2019s awake much less asleep. I wouldn\u2019t feel comfortable leaving her alone during that period of time.<\/p>\n
Thanks to all of you for your support. It\u2019s Chloe, the fighter, Dana and Sandy the protectors. I\u2019m the gofer and writer. I appreciate the fact that there are many who like my writing but please, it\u2019s only writing\u2026 something I do in my sleep. I don\u2019t need the praise. The other three are the ones much more deserving and the ones I hope all your energy is focused on.<\/p>\n
Blessings,
\nRon <\/p>\n","protected":false},"excerpt":{"rendered":"
Today was one fairly hard to describe. Chloe says that if the days are rated #1 as the best and #10 the worst, this was a #8 day. Sandy met Dana this morning, mouthing the words, \u201cSad, very, very sad.\u201d She did have a restful night however, the rest of the day has been just […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-293","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/293","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=293"}],"version-history":[{"count":0,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/293\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=293"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=293"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=293"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}