It\u2019s almost 1 pm and I haven\u2019t received an update from Dana since about 1 am, so my hope is that she\u2019s sleeping. My cold is almost gone so I think I\u2019ll be there for tomorrow, another big day. The first trach change is scheduled. If that goes well we can get in the unit where there is more room, relaxation and comfort\u2026 all-be-it slight.<\/p>\n
Grandma Lee arrived yesterday and that boosted Chloe\u2019s spirits a lot. The first visit was short and sweet but Lee will be taking the late shift tonight and that will be good for everyone. Rev. Barb is on call forever as well. That helps with the mental anxiety of who\u2019s going to be there when Dana crashes. <\/p>\n
Dana was very comfortable with the nurse and Rt last night so she said she would even be able to retreat to the quiet room if the recliner wasn\u2019t working for her. It really isn\u2019t a good fit but she makes it work out of necessity. Chloe has the soft call button and can use it well so that is also a relief.<\/p>\n
The nausea has passed but they have also stopped the feeds for the night. There is a plan to take another picture to make sure the tube has stayed in place. I\u2019m wondering if the feeds are just not agreeing with her\u2026 like a minor allergy. Maybe they have another type we could try. We\u2019ll see about that.<\/p>\n
Chloe lost a tooth yesterday, with the help of Mama. It was just too loose to be comfortable with it staying in her mouth. The last thing we need is for her to aspirate a tooth! So, after about 30 minutes the two of them were able to twist it out. Hope the tooth fairy has a wrist bracelet or she won\u2019t be allowed into PICU. <\/p>\n
Blessings to our Child Life Rep, Diane. She relieved Dana so she could get a shower and some food. Diane always knows what we need before we do. She\u2019s always a pleasure. And Patty Brandt is another one who shows up at the right times. She brought Dana something to eat, not knowing she was sequestered in the room without an alternate. <\/p>\n
Chloe didn\u2019t get her road trip yesterday. The nausea was too much of a problem so they kept turning the feeds on and off and kept a fan on her to help keep the feeds down. We don\u2019t want vomiting at this stage of the game! Her lungs sounded a bit better today so that\u2019s another reason for caution with the feeds.<\/p>\n
As soon as Dana is able to send me an update I\u2019ll get it on the blog. For now I\u2019m going to believe everything is calm and everyone is getting the rest they need. I know PT and OT will be up to see Chloe today. She was pretty beat yesterday but she has the determination. She will try and use her fingers in fine motor detail. Although it\u2019s very frustrating for her, she goes back and tries to touch two fingers together or grab something or point and touch something. She\u2019s in a do over stage of her young life. <\/p>\n
Be well,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
It\u2019s almost 1 pm and I haven\u2019t received an update from Dana since about 1 am, so my hope is that she\u2019s sleeping. My cold is almost gone so I think I\u2019ll be there for tomorrow, another big day. The first trach change is scheduled. If that goes well we can get in the unit […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-302","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/302","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=302"}],"version-history":[{"count":0,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/302\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=302"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=302"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=302"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}