Dana and Chloe had a rough night trying to adjust to the new room and procedures of the new floor. They didn\u2019t get to sleep until after 3 am. Then they were awakened at 7:30. Dana is trashed, completely trashed. To say she is hanging on by a thread is even an overstatement. With the help of Rev. Barb, I was able to get Dana away from the hospital for about 3\u00bd hours just to try and have her be normal. She cried at McDonalds, she dragged through the Pottery Barn and she felt overwhelmed at the house.<\/p>\n
Tonight she went home to try and get some rest and she was awakened again from her much needed sleep in her own bed! I thought everyone, by now, knew and respected the fact that she needs her rest when she\u2019s home.\u00a0Someone didn\u2019t get the memo I guess.<\/p>\n
Rev. Barb and Chloe had a great time. Barb read to her. Chloe took a little nap. When we arrived back at the hospital Chloe was winning at Bingo again. She won 3 games! It\u2019s great fun, and, for the kids that can\u2019t make it to the activities room, it is broadcast to their rooms. When they win they just call in and claim their prize.<\/p>\n
Dana gave Chloe a bed bath and washed her hair. That is quite a feat, when you\u2019re awake, mush less when you\u2019re asleep. The bed was going to be switched out for a different kind with an airflow mattress so it was a good time to mess the old one up.<\/p>\n
Sandy arrived shortly after we did and took over for Barb. Dana and I carried things to her car and, although she was without sleep for many days, she drove home, with instructions to call when she got there.<\/p>\n
Colin was going to be at the house so they would have a time to visit before his Dad picked him up. Dana went to bed as soon as she could after speaking with Colin. I guess Colin had a lot on his mind.<\/p>\n
Chloe, in the meantime, was busy at the hospital. She is now on the ventilator a few hours, off a few and on it overnight. This gives her a little assist to help build up her strength but not so much as to make her lungs lazy. She had fewer cough assists than any other day I\u2019ve been with her. She was looking good and her spirits were bright.<\/p>\n
Dr. Norwood appeared during our away time and Barb said Chloe completely lit up. They really have a cute little stick going on. Sarah does a lot for Chloe but ol\u2019 Swamp Fox really gets her going. Chris, you do a pretty good job too.<\/p>\n
The plan in place is to have Chloe go to rehab starting Monday. This will be hard work for her as it\u2019s 3 hours straight, two times a day. The rehab takes everything into account. There will also be training for us, on all the machines she may need, the trach, the exercises and everything to look for. They told us we would be experts by the time we were ready to go home. The bad part\u2026 we may not be going home for quite a number of weeks. It all depends on Chloe.<\/p>\n
Tomorrow we hope to have a digital speaking machine so Chloe can start talking. It won\u2019t be her voice but it will be a voice. It was all explained to us and we all think it\u2019s a great idea to get her to believe talking again is possible.<\/p>\n
This blog is being followed by so many who love Chloe. Dana, Sandy and I are the revolving caregivers but there are so many who would if they could. Thanks for being there.<\/p>\n
Blessings,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
Dana and Chloe had a rough night trying to adjust to the new room and procedures of the new floor. They didn\u2019t get to sleep until after 3 am. Then they were awakened at 7:30. Dana is trashed, completely trashed. To say she is hanging on by a thread is even an overstatement. With the […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-346","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/346","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=346"}],"version-history":[{"count":1,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/346\/revisions"}],"predecessor-version":[{"id":347,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/346\/revisions\/347"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=346"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=346"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=346"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}