What a day! Chloe didn\u2019t sleep well at all last night. Sandy and she dozed off around 3:25 am. I arrived around 8:15 and they already had company. No wonder everyone is dead tired. I left to go sit with my tea until the doctors started their rounds.<\/p>\n
Although the sleeping part didn\u2019t go well it wasn\u2019t due to anything special. She has been on the ventilator at night and hasn\u2019t had as much cough assist needed. We will go with the sleep meds again tonight and see if she can make it through the night. My feeling is that she\u2019ll be tired enough to sleep.<\/p>\n
Today\u2019s plan was to get to the gym. So, about 10 am the two PT ladies came to get Chloe. It was a good and bad experience. The bad was that there was not good briefing given about what Chloe could do or what she would need to bring down with her. They expected she could sit up, stand and get in the chair by herself. NOT. After giving them the briefing we were able to sit her up and get the wheelchair set up. That took about 30 minutes, however, now they know what to expect.<\/p>\n
Dr. Dorsen showed up during a time when Dr. Cockrell\u2019s co-doc was in the room. She turned to greet him, introduced her self and asked \u201care you with Pulmonary?\u201d He smirked and said, \u201cNo, are you?\u201d She answered and he just said, \u201cI\u2019m actually with Neurosurgery.\u201d So I said, \u201cyea, he\u2019s the one who\u2026\u201d and he interrupted, \u201cwho gets all the blame.\u201d I said, \u201cactually the credit. Without you this day wouldn\u2019t have been possible.\u201d He\u2019s my Santa.<\/p>\n
We did a cough assist before getting under way to the gym. Then Linda and her co-worker helped Chloe into her wheelchair and Sandy and I helped the caravan of machines and Chloe for the walk to the gym. It\u2019s located on the second floor; quiet a ways from the room, so it took a while. We took the scenic route back.<\/p>\n
When she saw the gym with a couple other kids there she started easing up. There were mats and table things. We pulled the chair up to an elevated mat and transferred her over. That went easier than getting her into the chair. Once on the mat she started to get really comfortable. Linda got an exercise ball and sat with it on Chloe\u2019s back and Chloe\u2019s feet were on the floor. Then she played beanbag toss. She was challenged to reach for the beanbags first and then to try and get them in the holes that were about 2 feet away. She hit the board most of the time, hit the nurse once and hit me once. She lost points for the last throw\u2026<\/p>\n
When she was sufficiently worn down we got her back in the chair and made our way toward the room. She was smiling all the way back to the room. And when we rounded the corner, there, in the middle of the hallway, was Chloe\u2019s best friend, JAKE, alias CHESTER the golden retriever with Patty Brandt. They had waited for Chloe to get back from the gym\u2026 probably for a while. Chloe almost climbed out of the chair to pet Jake. The meeting was mutual but brief, as we had to get her back in the bed. Patty and Jake waited patiently so that Jake could join her on the bed. They visited for about a half hour with Chloe petting Jake the entire time. Then it was time to wish Patty and Jake a Merry Christmas\u2026 by signing. She has that down well.<\/p>\n
Rev. Merv and company showed up with ukulele and voices to sing to us. They did some great tunes. They didn\u2019t know the words to Randolph the Bowlegged Cowboy though. Although they did try a little of Grandma Got Run Over By A Reindeer. They had as much fun as we did. Thanks guys.<\/p>\n
The most wonderful social worker in the world, Sarah, of the Swamp Fox Team, was by twice to cheer Chloe up. If there were a video about Social Workers I\u2019m sure Sarah would be the spokesperson for the entire Social Worker world\u2026.(There Sarah, am I off the Bad Kid list now???)<\/p>\n
Dr. Kevin Norwood was also here Twice today. Chloe asked him for a puppy for Christmas but he refused to give her anything live. So a picture of his puppy may be on the way and that would suit her just fine.<\/p>\n
Curiously enough, the only member of this fabulous threesome that didn\u2019t show up today was\u2026 ah..er\u2026 let\u2019s see\u2026 rather we didn\u2019t see\u2026 Chris. Sick \u2018em Sarah. Oh, how I just made Sarah\u2019s day. We forgive you Chris. You looked busy. Merry Christmas \u201cA\u201d Team and You Too Captain Dr. Michael Dorsen. <\/p>\n
TJ\u2026 Chloe loved the hat. You are a talented guy. You\u2019re welcome to visit anytime but don\u2019t expect us to be back there\u2026. No offense\u2026 <\/p>\n
As you can probably tell by my demeanor tonight I felt as though today was pretty good. Chloe is a happy camper tonight. She\u2019s about to get her boots off for the night and she is getting her last meds for the night. After some Christmas TV Cheer we hope to have a long successful night of sleep. <\/p>\n
So to all of our tremendous followers and supporters we wish you a Very Merry Christmas. There are many of you that I personally would love to be with tomorrow. And I know that feeling is room wide. We will have a Merry Christmas because we are together and Chloe is happy. Colin will join us tomorrow afternoon and that will complete Chloe\u2019s picture. Our two little Christmas Trees are brightening up the room and we will be up at a reasonable hour tomorrow to see how blessed we have been.<\/p>\n
Blessings and Christmas Cheer,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
What a day! Chloe didn\u2019t sleep well at all last night. Sandy and she dozed off around 3:25 am. I arrived around 8:15 and they already had company. No wonder everyone is dead tired. I left to go sit with my tea until the doctors started their rounds. Although the sleeping part didn\u2019t go well […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-348","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/348","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=348"}],"version-history":[{"count":0,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/348\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=348"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=348"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=348"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}