It\u2019s one of those rare nights that I\u2019m away from Chloe for the entire day. I took Dana\u2019s suggestion and slept in, got some things done and tried to relax for a whole day. I wasn\u2019t sure I\u2019d make it without going over there but I guess I surprised myself.<\/p>\n
Sort of like what happened according to the latest email Dana just sent. Here\u2019s what it said: \u201cSo I just got her boots on, she was in a feisty ‘night owl’ mood, (always perks up in the pm), and then…I asked if she wanted to sit up in bed with just ME here.<\/p>\n
It wasn\u2019t a no… It was a ‘maybe\u2019\u2026 so we went for it, Just like Katy showed us. Piece of cake. Chloe saw herself in the mirror, (I brought her attention to the lousy job of 1 pigtail I had done.) Anyway, she sat up for a couple of minutes and didn\u2019t look disturbed\u2026 AT ALL.<\/p>\n
We had MJ on at the time so we did a little bed dancing to celebrate.\u201d<\/p>\n
It\u2019s moments like this that keep us all going. Or times when Chloe just cracks up laughing like she always did on a normal day in the past\u2026 but without sound right now. We need these times, all of us. <\/p>\n
Today I was transfixed on the problem facing me with my daughter in Wisconsin. One of her three-year-old boys broke his femur yesterday. She has four kids under five years of age, and a new puppy in the house, and now she has a little guy who will have to be carried everyplace since he can\u2019t put any weight on his leg for three weeks. So, where\u2019s Dad when she needs him? He\u2019s taking care of his new family and, once again, his oldest daughter takes the hit. So the ol\u2019 guilt gene kicked into overdrive.<\/p>\n
Then I get reports from the hospital and I know that, although it has a confused feeling, I\u2019m doing exactly what I am supposed to be doing. And, you know what\u2026 In the deepest part of my daughter\u2019s heart she knows it as well. <\/p>\n
Even though it\u2019s Sunday, things didn\u2019t shut down at the hospital entirely. Dr. Cockrell showed up early to make a decision about nutrition and rehab work. We had been concerned about a new plan to do bolus feeding with Chloe. This would mean pulling her nose feeding tube out a ways so it was positioned in the stomach. Then we would give her three large doses of feeds each day, just as if she was getting a meal. <\/p>\n
Sounds like a plan until you go with her history. She hasn\u2019t had anything in her little stomach in twenty-five days and it\u2019s a stomach that has had a history of not being too settled. One thing we really don\u2019t want for her is to vomit. It was bad enough when she didn\u2019t have a trach. We don\u2019t want to find out what it would be like with one of those in her throat.<\/p>\n
Dr. C. decided this wasn\u2019t the right time but it\u2019s still on her horizon. She also showed Dana the latest chest x-ray and it was looking very good, almost normal. That\u2019s a great thing!<\/p>\n
Chloe spent some time in her chair today, the wheelchair. She didn\u2019t take a trip but just sitting there is special for her. The more we have her sitting up the better it will be for her lungs\u2026 and her spirits.<\/p>\n
Colin came to the hospital again today with his Dad. It\u2019s always as treat when Dana and Colin can have some special alone time together. He is one who tends to build up a bunch of questions or concerns and unloads them all at once. The good part is that he does, indeed, unload them.<\/p>\n
Dana just wrote that there were two nurses in the room so she was going to get a little dinner. There have been some things brought to us that have really hit the spot. The last salad was tremendous. It\u2019s such a treat to be able to have the choice of going to the same old grease trap or having something homemade with the extra ingredient\u2026 love. <\/p>\n
And that\u2019s what we send out to you as well\u2026 love. Thanks for being there.<\/p>\n
Blessings,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
It\u2019s one of those rare nights that I\u2019m away from Chloe for the entire day. I took Dana\u2019s suggestion and slept in, got some things done and tried to relax for a whole day. I wasn\u2019t sure I\u2019d make it without going over there but I guess I surprised myself. Sort of like what happened […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-351","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/351","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=351"}],"version-history":[{"count":0,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/351\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=351"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=351"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=351"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}