Just when you thought it was safe to go back in the water\u2026 Here\u2019s today\u2019s report based on email information, as I didn\u2019t make it to the hospital today. Bad me\u2026 I spent the day getting more of Chloe\u2019s Peace Sun Tee Shirts for her to sell and I didn\u2019t get back to the hospital with Dana\u2019s See\u2019s Candies. Tomorrow for sure!<\/p>\n
So, Chloe had a good night and Dana didn\u2019t. She just can\u2019t sleep lately. That\u2019s something I can relate to. We aren\u2019t really sure why we can\u2019t on the good nights or when we are at home. Guess we just never leave the high alert state of mind long enough to wind down. Of course days like today give us good reason to stay on top of our game.<\/p>\n
The day saw a Respiratory Therapist cough all over Dana and Chloe and then go into the hall for a full coughing fit. Then he tried to return without putting a mask on\u2026 even trying to justify it by saying it was just a tickle. This week Chloe has had the thickest secretions of her stay there. You don\u2019t think Mama Lion would let that slide do you? Not a chance. He put a mask on.<\/p>\n
Then there was the \u201cnurse\u201d who sat Chloe on the bedpan\u2026 backwards\u2026 And left her O2 mask off for 45 minutes while she looked for a trach pad to do a dressing change. Another time Chloe rang for a nurse and no-one answered and no-one came in. This is something I\u2019ve addressed at the meetings two different Tuesdays. I guess Dana won\u2019t get any sleep tonight either and I guess I\u2019ll be bringing it up again on Tuesday.<\/p>\n
Frustrations mount. The schooling at the hospital is weak at best. So we looked into getting tutors for her and found out that teachers from Bridlemile can\u2019t come in. There is some protocol they would be breaking with the school district. The principle there is trying to work something out. In the meantime I think we should just list her as home schooled and ask the teachers to visit Chloe. This is just nuts letting a TAG student just sit around without any schoolwork to do.<\/p>\n
Okay, so enough complaining. Overall I think we are getting some good care but there sure are some huge gaps that people fall through during the weekend especially. I personally believe bringing it up is a good\/bad situation. It\u2019s good because we bring it to the attention of those in charge of making changes. It\u2019s bad because we are perceived as trouble and there have been those who have slinked away from us in fear they would be the next one criticized. It\u2019s really too bad if that feeling is accurate. I hope I\u2019m wrong and that people are big enough to recognize their mistakes and take the steps to correct them and make their work procedures better. Many body actions tell me otherwise though.<\/p>\n
My drive to Albany was good for me to be able to have a long, 172 mile, time to think. The only trouble is it went full circle and I\u2019m not sure it accomplished anything. It was good to have a nice talk with James at the Expertees shop where he makes Chloe\u2019s shirts. I was his only customer all day so it was good for me to drop in for him as well. If any of you have any need for tee shirts as fundraisers or family outings, or business gifts or whatever\u2026 Please give James a call. He does great work, doesn\u2019t rip anyone off and needs the business. He\u2019s certainly helping us out and he and Daniel are very wrapped up in Chloe\u2019s story.<\/p>\n
A quick update… Chloe walked today, about 10 feet, twice, with the walker and people very, very close to her I’m sure.\u00a0 She won’t take no for an answer.\u00a0 She’s like the little baby that trys to walk and falls on its butt.\u00a0 It doesn’t sit there and whine “I’ll never be a walker.”\u00a0 It gets back up until it becomes a walker.\u00a0 That’s Chloe, and that’s Colin as well, with his drums, piano and voice.\u00a0 They are definately related.<\/p>\n
Final chapter for tonight. The nurse forgot to give Chloe her benedryl. Dana thought she had but Chloe was the one who knew for sure. She called the nurse for it at 11 pm. 24\/7 is not only a nicesity, it\u2019s a necessity.<\/p>\n
Be well,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
Just when you thought it was safe to go back in the water\u2026 Here\u2019s today\u2019s report based on email information, as I didn\u2019t make it to the hospital today. Bad me\u2026 I spent the day getting more of Chloe\u2019s Peace Sun Tee Shirts for her to sell and I didn\u2019t get back to the hospital […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-387","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/387","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=387"}],"version-history":[{"count":2,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/387\/revisions"}],"predecessor-version":[{"id":388,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/387\/revisions\/388"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=387"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=387"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=387"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}