Five days and counting. Chloe is pretty excited, as are we all. Today we started taking things away from the room and it already looks bigger. We are all doing our final touch-ups on what to do when we get home. This includes discharge training for all the adults who will be taking care of Chloe.<\/p>\n
Nothing out of the ordinary for PT\/OT, speech or school today but we did hear that we should be getting our overnight nurse. That will make life so much easier. Our school nurse was hired but without the overnight one we would have been very strapped for help. Getting Ivey suction trained is a bit out of the question and Kitty, even less. <\/p>\n
Our new trachs aren\u2019t going to be in until Tuesday, so we are down to the 12th hour for getting a change before we go home. I guess we are at the mercy of the delivery service. The longer we wait the better Chloe likes it. She got a little bummed out during a long conversation with Dr. Steve, Mama and me about how to help her cope with the change. Long story short she\u2019s choosing to keep it as being very scary for her even though the next change should be the easiest, based on history and the type of trach we will be using.<\/p>\n
At 4 pm when Chloe came back upstairs from therapy she was overjoyed to see Mama in the room. It\u2019s been a long time apart for her, although she was in touch and telling Mama to take care of herself.<\/p>\n
We took a stroll and w\/c drive to the sky bridges today. She let her balloons fly to the ceiling above a banquet that was being held in the atrium. If there hadn\u2019t been security on the 5th floor we probably would have launched our paper airplane\u2026<\/p>\n
Chloe has still been getting her very blocking secretions. When that happens it is a trying experience. At 8:30 tonight we spent a good four minutes trying to clear her. We do have backup plans but we sure don\u2019t want to have to use them.<\/p>\n
Tomorrow Dana and I will go to Wilson High School for Colin\u2019s choir contest. It\u2019s short but he has a solo in one of the songs. We try not to miss anything he has been doing, especially during these past three and a half months.<\/p>\n
Looking forward to the last weekend in Emanuel Hospital.<\/p>\n
Be well,
\nRon <\/p>\n","protected":false},"excerpt":{"rendered":"
Five days and counting. Chloe is pretty excited, as are we all. Today we started taking things away from the room and it already looks bigger. We are all doing our final touch-ups on what to do when we get home. This includes discharge training for all the adults who will be taking care of […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"","footnotes":""},"categories":[3],"tags":[],"class_list":["post-468","post","type-post","status-publish","format-standard","hentry","category-daily-news-post"],"_links":{"self":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/468","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=468"}],"version-history":[{"count":0,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=\/wp\/v2\/posts\/468\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=468"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=468"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.chloewatts.com\/wordpress\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=468"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}