It\u2019s been a few days since you last heard from me. My work life has changed a bit for the next couple months. The census hired me for the most boring job I have ever signed on for in my life! Oh well. At least I\u2019ll be able to name my own schedule so that I can still be on the Chloe team.<\/p>\n
She seems to be getting a cold. Her secretions have been very thick. This means that her trach plugs and she can\u2019t breath. Scary until she can either clear it or we can get the suction catheter to punch a hole in it so we can grab it. There should never be a question that she needs 24\/7 care with this type of thing in her present. Until the trach comes out this will be our world.<\/p>\n
Yesterday Dana reported something kind of cool. Chloe was downstairs watching some school required videos. When she didn\u2019t think she was being watch she decided it was time to stand up. So she did, and put her hands on her hips while watching the movie. She sat for a while and then repeated the process. She wants so much to be able to do what she could on December 1st. It\u2019s just such hard work for her to get there.<\/p>\n
Today Dana put her in the car for some errand running around. They can only get out when they are only going on roads that Dana can pull to the shoulder quickly. If Chloe needs suctioning it\u2019s usually \u201cright now!\u201d Thus, when we need to go long distances it is a two adult job. Well, they went to the video store. Chloe went in and met the manager who had a similar situation himself once. He heard her story but today was the first time they met. Unfortunately Chloe still doesn\u2019t want to be seen in her condition anyplace near her home. She is so against anyone seeing her walk like she does. Although she did take some steps yesterday.<\/p>\n
This weekend we hope to get out some. Saturday is supposed to be sunny so I\u2019m sure we will go someplace. Maybe we\u2019ll go to the water and let her feed some ducks. The more normal things she does then the more normal she\u2019ll likely feel.<\/p>\n
We are scheduled to get the feeding button on the 31st. This will be a great change as even the new tube end we had placed last week is leaking if we don\u2019t tape it. When that happens it\u2019s a floodgate and everything needs to be changed. Not fun.<\/p>\n
I hope to have a very happy blog report at the end of the weekend. <\/p>\n
Be well,
\nRon<\/p>\n","protected":false},"excerpt":{"rendered":"
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