Because We Love Her

Wednesday June 18th, 2008

June 18th, 2008 Posted in Daily News Post

Last night was just great. Both Dana and Chloe finally got a good night sleep. I didn’t do badly either in the recliner. Chloe’s pain level was pretty good until late morning when she hit another spike but we were able to keep it from going through the roof.

About noon her Oncologist came in and told us the preliminary pathology report had come back. It wasn’t exactly what we were hoping for but it was much better than we could have received. Chloe has a Glioma tumor. According to the Mayo Clinic: “Gliomas can be either benign (slow growing) or malignant (fast growing).” We are facing the “Slow Growing or Benign” form.

This means only that the form of follow-up treatment will be different than if it was fast growing tumor. It also means that the “Outcome is Very Good” per her Oncologist, although there is a long, long road ahead. Chloe will be monitored the rest of her life after her treatment for this tumor. As is often the case, the treatment can also cause problems so they do the monitoring to keep ahead of anything unwanted.

Albeit begrudgingly, Chloe was able to walk the halls a bit today and went to Bingo with the other kids. She spent time with her physical therapists and Child Life Coaches. She gets wiped out easily but she also knows that there is a possibility she will be allowed to leave the hospital tomorrow, pending our ability to control her pain. She will go home with a feeding tube that we will use there. She will also require a port be placed under her skin so that treatment can be administered with as little discomfort as possible.

Thank you for following Chloe’s story on this site. The more of a support team she can build the better. Prayers work, but only if you believe them. We are believers.

Update 11pm:

Chloe went to bingo and won the prize she had her eyes on from the moment she walked into the room. That was great because the rest of her evening wasn’t so good.
*******
She is running a bit of a fever so they took a culture. We’ll know more about 3 P.M. tomorrow. She also had two bouts of not keeping things down. This may be related to the fever or the medications that have changed a little. So we need some deep prayers that the temp will return to normal overnight!!!
*****
I think our hopes of leaving tomorrow are slim at best. This will give her another chance to eat a Shepherd’s Pie dinner. We were in the dog house for taking it away too soon the other night. We thought four hours at room temp was probably enough. So she ate a supersized Rice Krispies Bar instead. Gotta Love Her!!!














  1. 60 Responses to “Wednesday June 18th, 2008”

  2. By Deb Labarge on Jun 18, 2008

    God Bless you Chloe, Have Faith our Prayers are with you
    George and Deb

  3. By Steve, Joy, Molly & David on Jun 18, 2008

    We are praying for you Chloe and God Bless You!

  4. By Linda Daiber on Jun 18, 2008

    Hope you are resting well, sweet Chloe! Sounds like you’ve been through alot, but you know everyone is taking good care of you and loves you tons!

    I look forward to hearing good news about you getting better and stronger!

    Linda

  5. By angie drew on Jun 18, 2008

    Chloe, Hope you are resting well. My prayers are with you in this time of need. Get well!! We need your Mom back at work. We miss you Dana but we are doing ok without you. Take care of your little sweet thing and we will see you soon.

  6. By michael on Jun 18, 2008

    Cloe my sweet beautiful friend,
    Bonnie, Suzie and I are praying for you every day and sending you all the love and healing energy in our world. We look forward to getting one of your hugs and will come to see you when your Doctors and parents tell us you are ready. Big beautiful blue oceans of love to you. Michael

  7. By Alex & Britt on Jun 19, 2008

    Hi Cloe,
    You have friends you have never met all over the world. We all hope you will get better soon!

    Alex (5) & his mom Britt in Sweden, Europe

  8. By Patsy -Belmont, NC on Jun 19, 2008

    God Bless you Cloe! Please know that you are in the thoughts and prayers of people who believe that God can make a difference!

    Love to you and your family!

  9. By Choline& Kodak =-) on Jun 19, 2008

    MY Goodness! Well, guess your the latest member of the Girls ain’t no Sissy’s Club! I love you Doodlebug and your doing AWSUME! You keep it up . I am so proud of you!!!

    Hey what did you win in bingo? tell Ron to tell us the details of the good things!

    Hugs to you and Colin and the Family

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