ChloeWatts.com

Thursday, June 19th, 2008

Wow. How do I try and describe the week we had today?

When I arrived at the hospital, Chloe had dragged Dana downstairs to get a Chi Tea and go for a sit in the garden. It was beautiful out with lots of sun and warmth. I saw a real Chloe smile when I showed up. Then we walked all the way to the room even though she still has her fever.

Soon the doctors showed up for a talk. Nothing new on the Pathology report and we may not even get a final result for a couple weeks. They prescribed a strong antibiotic to start ASAP. There is no obvious area of infection and the culture had not come back yet.

The biggest news came in the form of a get out of jail free card. They told Chloe that she was eligible for a pass away from the hospital for three hours! What a big spirit boost.

At 4:15 P.M. we put Chloe in the car and the three of us, Dana, Ron and Chloe went home to see Ivey. The meeting was crazy but we protected Chloe well. The first place she wanted to go was to her bedroom and lay on her own bed for a little while. Next I carried her outside to the gazebo down in the backyard.

Chloe sat in the rocker and Ivey sat next to her in the chair. Annette, Chloe’s sitter/stand-in-grandmother, came over and sat with her. It was a special meeting for both of them. We gave them their space.

After Annette left Chloe had half of her Icy finished and a slice of watermelon. All was going well… until it wasn’t. All of a sudden she felt sick. We got her to the edge of the gazebo and she vomited. Then again, this time violently, sending the feeding tube up her throat and partially into her mouth. We kept her calm as we called the hospital. It was decided the tube had to come out so I elected myself and pulled it out for her. After that she was feeling a little better. We headed back to the hospital.

Dave and Ramona arrived in time to assist with the re-tubeing. It was a wait of about three hours before the procedure started. This was a very unpleasant experience for Chloe as they only had a larger tube and the nurse that tried the first three times had to hand it of to a more experienced one to get the job done. Dave and Ramona said their goodbyes, as everything seemed to be going better.

Then…. Then the interior wire in the tube wouldn’t come out. It was stuck. Not until the three nurses consulted with PICU and the original nurse who inserted the tube was able to come back, did the wire finally unscrew and pull out.

Dana is wiped out yet again. Hopefully everyone will get some sleep tonight!