Because We Love Her

Sunday, June 22nd:

June 23rd, 2008 Posted in Daily News Post

We had hopes of Chloe only spending one night in PICU.  We had those dashed as she is just not progressing, as we would like. 

Her pain meds are way up, her temperature is still elevated, she can’t eat anything for awhile yet… only tube feedings, her spirits are shattered, she’s bored out of her skin, her sleep is intermittent and there’s not too much else to report. 

Dave and Ramona stayed last night until about 2 A.M. and Sandy spent the rest of the night.  In the middle of the night Chloe had to be reminded to breath.  After getting some combination of meds she had labored breathing for a while.  Not something we want. 

She did sleep fairly well last night with the extra meds to help.  During the day she was able to sit up and watch a movie with Dana.  She has been for walks only a couple times a day.   

Her incision site itched so much the other day that she actually had it bleeding.  So they have put a bandage on the site to keep her off of it.   We still have an infection someplace and the cultures aren’t complete yet.  

All in all we are all wiped out and ready to see some marked progress in her recovery from this surgery.  Her strength needs to come back and her weight needs to come up before any other treatments can be administered.  

Dana had her first night away from the hospital in two weeks last night.  We had a real meal in a real restaurant.  She actually slept about six and one half hours.  We returned to the hospital precisely at the right time, as was dictated by our director, Chloe. 

Today I made pork chops, potatoes and applesauce.  We ate our meal on real plates with real silverware… in the family room of the ward.  It’s some part of normality. 

Bear with me for a moment please.  I need to vent. 

An interesting thing happened to me at church today.  I’ve been down this road more times than I want to admit.  One thing is sure to happen anytime you are facing a life-threatening situation.  You will have someone tell you of a tragedy where a friend or relative died.  It doesn’t matter that there is no relevance to our situation.  They just think they need to tell their story.  That actually happened to me Friday night.

Another thing happens all to often.  Someone will come out of the woodwork with a miracle cure.  They are so sure this is going to work that they push so hard they push themselves off a cliff.  Today’s event. 

There are two things I won’t stand for.  One is someone, other than God, trying to push religion on me.  The other is someone with the IQ of a doorknob, and, certainly not a PHD anywhere near their name, trying to push a sure cure on me and basically telling me I’m killing my loved one unless I use their MLM product.  Do they really believe I would put the life of a loved one in the hands of a Multi-Level Marketing Scam?  Get real! 

We have far too many people who love Chloe, and know how to conduct themselves around a life-threatening situation, for me to let one bozo make me feel guilty.  I welcome anyone who may want to share some information with me and leave it at that.  But please, No Pushers Allowed.  Chloe is on enough drugs. 

Thank you to all you wonderful friends and family. You help make this journey somewhat bearable.  And thank you, but no thank you to the very few who have not a clue.  It’s late, I’m tired and I had to vent.  Blessings to you all.

 

  1. 56 Responses to “Sunday, June 22nd:”

  2. By Linda Daiber on Jun 23, 2008

    Hi Ron & Dana & Chloe,

    Just a note to let you know I’m thinking about you and praying like crazy. Glad to hear you’ve been able to get at least a bit of rest…you’ve all been through so much!

    Hoping along with you for the very best. Thanks for posting the updates.
    Linda

  3. By Sarah Koch on Jun 23, 2008

    Good morning all,

    Like Linda said, we’re all praying like crazy. And my thanks for having set up this site.

    Good for you, Ron, for venting: hope it did you good, and it was very much to the point.

    Best to you, Chloe, and to each and every one of you. (Hi, Colin! Hope that cough is gone soon –),

    Sarah

  4. By Choline on Jun 23, 2008

    I was wondering how you where dealing with the people who do that, and I’m so glad you stood you ground. alternative measures can work but people and there born again “I FOUND THE LIGHT but i cant figure out my life” mentality can really be destructive. hugs to you both and I wish i could learn a bit of your grace on how to deal with those people. GOOD FOR YOU.

  5. By Jackie Fischer on Jun 23, 2008

    Ron, you are FANTASTIC. Dana is SO lucky to have you in her life! I was a fan before, now i’m a huge fan. 🙂

    Chloe: If your incision is itching, that’s a really good sign! It means you’re healing!

    Dana: I know it doesn’t feel like it, but you’re on the yellow brick road. It’s just foggy. 🙂

    love jackie

  6. By Choline on Jun 23, 2008

    Please forgive my earlier comment. I feel it may have been unkind to whom ever is going threw a transition of enlightenment no matter how appropriate or inappropriate they may act and yet i still support Ron in his position.

    hehe and ya so the yellow brick roads a little foggy and the Munchkins look like Umpa Lumpas ya still got one hell of a TinMAN!!!!!

    just keep clicking the heels of those ruby slippers! No place like home! no place like home!

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