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Wednesday, June 25th: (Pictures make it all the way to the bottom.)

June 25th, 2008 Posted in Daily News Post

How are you doing Chloe? “Miserable.” That about sums up the bulk of her day today. She really looked as Critically Ill as she medically is. It was a day that I’d say she was feeling, ‘oh what the hell. I don’t really care.’ Maybe it was that funky moon last night. I was a pain in the butt all day too. Couldn’t get out of Anger Mode.

No sugar coating going on here but there were some positive things that happened today. Dana was able to get home for a couple hours. She gave Ivey her pill and took her on a walk, took a bath, watered her plants, helped me load the trailer to bring garage sale things to my house. All that and she only broke down once, when I had her thinking about getting her life back.

You see, her focus is all Chloe. Some may not understand this, but I certainly do. I’ve been there, done that. It’s no fun, but it’s necessary. It’s not martyrdom, it’s not grandstanding, or any other thing one who doesn’t understand might label it. It’s a Mama watching over her young, hoping a praying that the boogieman will go away and leave them alone. This boogieman is named Fred. (Chloe’s name for the tumor.) He’s pretty damn scary and very capable of doing harm, ultimate harm.

With as fast as things have changed at the hospital for Chloe, Dana is on top of it all. She learns daily other safety barriers to place between Chloe and Fred. There is one constant watching over Chloe. Sure there are nurses and doctors, but there is nothing more valuable than a conscious, conscientious Mama.

It’s been two and a half weeks. Dana has been by Chloe’s side all but about 10 hours of that time. She deserves a huge credit. Like I’ve said before, this is not about us, it’s all about Chloe… and saving her life!

More facts about today. Chloe’s antibiotics were increased, her laxatives discontinued, pain meds increased a bit and blood draws every four hours. The good thing about all this is that her pain level seems to be a little lower, her temperature is a little lower… even without Tylenol, her system is moving fairly normally now, her blood draws have yet to show anything growing, her sodium is up to the bottom of the acceptable level and she has been getting some deep sleep, although it’s interrupted often.

The latest worry is pneumonia. Because she is so weak and has little desire to get up other than to use the bathroom, she is a candidate to have her lungs fill up. They are on top of that with breathing exercises. Tomorrow we will try to get her to take a walk around the ward. We’ll see.

The highlight of her day was when Jake showed up. He’s a golden Retriever who loves to lay in bed with her and have her stroke his head and ears. She even sat up to brush him for about 3 or 4 minutes. “Dog” of course is “God” backwards and I believe she truly sees that in every dog.

There was a yesterday story that completely blew me away. I’ll share it with you because it shows just how good some people can be, even to those they don’t even know.

Last week I bought a new saxophone from Gary Sugal of Providence, RI. He has his own company and manufactures these horns, which I’m pretty impressed with. Well, if you’ve received an email from me you know that below my name is the websites for my church and for Chloe.

Well, after sending Gary a review of this new horn he went to the website and read the entire thing. He emailed me with his best wishes for Chloe and asked if she was interested in music, particularly clarinet or guitar. I told him she was a fine vocalist, that she liked to play the piano and probably would like guitar at some point in time.

His response…. “I’m sending her a guitar.”

Understand, he doesn’t know me from Adam, much less Chloe. I was amazed and told him so. His reply? “I’m just a guy who read her story and was deeply touched and feel very sorry she has to go through this.” He just felt compelled to help. I can relate to that. He won’t get a dime for the guitar but he will get so much more, inside. It’s wonderful to know that the world is full of good people.

Typing this might just help me get over my anger spurt today. Blessings to you all. Please keep the prayers coming. They are needed much more than anyone can imagine. This is one little person that must live. She must.