Friday 12-4-09
December 4th, 2009 Posted in Daily News PostIt’s now Friday afternoon and there has been a lot of information shuffled our way. Some of it is very good, however, as Dana put it, we don’t want everyone getting excited about the good news when Chloe can’t breath.
What we have is Chloe sleeping right now and still on the ventilator. Why we weren’t able to extibate her yesterday is a mystery that we should have some answers for tomorrow about 1 pm.
They will bring her to the OR to try to extibate and also to look at her vocal chords. There are many different possibilities that I won’t go into because it would be guessing. What we need is for everyone to see the vocal chords working exactly as they need to work.
If everything is working as it should after they pull the tube then she will be allowed to breath on her own. If there are problems they will re-intibate her and watch her progress for a week. That’s as far out as I want to project at this point.
There is some gunk in her one lower lobe of the lung. That is being treated and, hopefully, it will be resolved before the procedure tomorrow. Our best case is that she will come back upstairs without tubes.
The other things discussed yesterday concerned the vision and surgery site. The vision will be addressed with a neurologist today. It could be from pressure. That’s an uncertainty.
The other thing that happened was that Chloe had a right side stroke. It was called unconsequential by Dr. Dorsen. What exactly that means isn’t clear.
Problem number whatever… she has left side swelling at the surgery site. This could be causing some of the many problems she is encountering. She is on steroids, antibiotics and pain meds. All of these have side effects as well. So to say one thing or the other now is a guess.
The best news we received was about the tumor. As I stated in a former update, we couldn’t see the tumor, just where it was before. The radiologist did his high scale search of the MRI and concurred with we laymen. He couldn’t see it either.
This is the part Dana doesn’t want everyone jumping for joy about when there are so many other problems remaining that could be short or long term problems. It is good news that the tumor isn’t wrapped up in and out of the brainstem though. If we hadn’t been aggressive we may have had more problems down the short road.
We are a long way from home free. We plan to take the Prayer Train out of this wilderness though, so All Aboard!
Blessings,
Ron
6 Responses to “Friday 12-4-09”
By Lisa on Dec 4, 2009
Thanks Ron for keeping us all updated. I check the site several times each day and appreciate your diligence in keeping us informed. Tell Chloe she is so brave. I will continue sending prayers your way. – Lisa
By Larry Sherman on Dec 4, 2009
Like Lisa, we’ve been watching for your updates Ron and really appreciate them. Chloe, and your family, are in our thoughts. I know that “stroke” sounds pretty scary, but small strokes can be relatively inconsequential as Dr. Dorsen suggests. And, given Chloe’s age and strength, she has a great chance to recover from such an event. If you guys have any questions about that let me know. My colleague, Steve Back, is a pediatric neurologist who essentially specializes in strokes in the developing brain.
By Kevin and Laura on Dec 4, 2009
Ron, Dana, Sandy, Dave and Ramona: We are sitting in the open air lounge where they have wireless service here reading the string of updates. We’re grateful for this – haven’t wanted to call and wake anyone’s sleep to get the lowdown. It’s a roller coaster just reading about it. We can’t imagine what it’s like for all of you. There isn’t anything we can say that isn’t cliche (like “hang in there…”). Just know we love you. Give Chloe a hug for us – even if it has to be in sign language. Uncle Kevin and Aunt Laura.
By Kevin and Laura on Dec 4, 2009
We forgot to include Colin in that email we just sent. Please give our love to Colin too. Uncle Kevin and Aunt Laura
By Tim/Agnes on Dec 4, 2009
Hello Dear Friends,
I wrote an email to dbluehorse early this morning and didn’t realize I should be sending our support and communications here..
Mom (Agnes),Teri and I are so with everyone of you..As so many and all I am sure are with you in spirit and feel the moment and moments with you…There are no words that can explain how we love you guys from a computer but let me say thank you for the team and family you are…
Thanks Ron for doing such a fine job of informing us…I can’t imagine what you all must be going through, but I can say we most certainly feel it with you far away or close…
I can only say from my heart Dana,Colin,Dave that mom and I are your extended family and we are there for you as a family as well..
Teri say’s Hi and expresses her deepest of thoughts and love..She alway’s wanted a little girl and Chloe is very close to her heart and has such fond memories of their get togethers of the past…
Chloe is our Hero, such a brave soul..She speaks to me in volumes….
Please call me anytime for anything…Tell Colin to keep up the great job of being the man of the house..You sure have grown up to big fella!! I hardly can recognize you..You have turned and are turning into a very fine gentleman..Keep up the Great work!! Chloe will need you when she get’s home.
Can’t say we Love you enough Friends/Family, and we are waiting with great expectations and the warmest of thoughts..
Love you all,
Agnes, Teri, Tim : )
By Lyne Collin (Montreal, QC, Canada) on Dec 4, 2009
Magic Wand (By Joanna Fuchs)
I wish I had a magic wand
To make it go away;
I’d wave my scepter over you
Until you were okay.
I’d think good thoughts; I’d send you love;
I’d transmit healing vibes;
My wand and I would surely beat
Whatever the doc prescribes.
But there is no magic scepter, so
I cannot cast a spell;
Just know you’re often in my thoughts,
And I hope you’ll soon be well.
Lots of Love & Strenght to all !!!
Lyne xoxoxo