ChloeWatts.com

Saturday, June 28th:

This roller coaster ride is not any fun! We get good news and then things go south really quick. The temperature and nausea is back. So is her lack of interest in doing anything. It’s a very depressed sense we have been seeing in her lately.

Although the nurses and all of us tell her she is doing better I don’t think she has any belief in it at all. Then she hears a little tidbit that she may be facing another surgery in the future and she completely backs away. “I never want another surgery, ever!”

I can’t say as I blame her and I would have to be convinced beyond a shadow of a doubt that this was the way we should proceed before I’d feel any comfort around that decision as well.

Chloe had a rough night and morning. The nurses were slammed last night with oncology kids and their beeping machines. So Dana was Nurse Mama most of the night. In the morning Chloe vomited again. One step forward, two back.

The nurses got her up a couple times today for short periods. She’s required to sit in the chair even if she won’t be eating the meals that are brought to her. She needs to be upright to avoid pneumonia. That’s all she would need.

I wasn’t there today so what I have been told by Dana is what you will be getting. Dana finally was relieved of duty at about 3:30 pm by Aunt Laura. Dave takes over at 10:00 pm and Dana may just get a good night’s sleep tonight at home, with Ivey. She fell asleep on her hammock earlier and slept three hours!

All in all the day for Chloe was a mix, but more frustrating than not. We need her temps to go down, her food to stay down, her pain to go away and for her to start eating meals rather than just getting her nutrition through a tube in her nose. Benign was fine but the remaining tumor is still in the worst possible place it could be. This may be what’s causing the continued problem, we just don’t know. We do know it can’t stay there and we will need to find a way to get rid of it for good. So, ramp up the prayers, seeing her brain stem clear of all things that don’t belong.

Blessings!