Sunday 12/6/09
December 7th, 2009 Posted in Daily News PostThere has been some confusion caused by an old automatic message that goes out anytime you send an email to Contact Chloe. This message said Chloe was home. That was from last time she was in the hospital, 2008. The blog is still the most current information and we certainly apologize for those of you who received that bogus email.
Sunday is supposed to be a day of rest… but I guess not for Chloe. She had a restful night last night but about 5:30 am the agitation began. This is good and bad as I’ll explain in awhile.
She is mad, very, very mad. She didn’t sign up for all this and can’t figure out why she has to go through it all. I can’t begin to imagine how frustrated she is. She went into surgery as a normal 10-year-old happy girl. She didn’t have any symptoms and took us at our word that she needed the surgery. But she also thought it would be no different than last time. A day or two in PICU and then out to the third floor and home in a couple weeks was what she expected. The surgery Was Indeed Needed but she will only believe that when she is up and about.
Never in our wildest dreams did we foresee the Ventilator and Partial Paralysis. But that’s what we are facing. She can move her left arm and leg pretty well and she flails around in complete frustration. Her eyelids are getting better and so is her vision. She can now hold her eyelids open for a longer period of time and I didn’t notice the eye shake of the last few days.
Dr. Dorsen came in this morning to see her and was very impressed with her movement. He sees as I do, a complete recovery in her future. She is still in one heck of a mess but I’ve seen improvements that just help me believe even deeper that we are going in the right direction.
Dr. Dorsen also thought the anger was a good thing. It gives her some movement but it also shows she wants to get on with it, now, not later.
All day she had blood pressure problems so they medicated for that. When I arrived at the hospital around 8:30 pm she was resting well. About 10 pm they ended up waking her for some regular maintenance. From then on she was back in mad mode. We just couldn’t make anything work for her. She doesn’t want anything we ask if she wants. She just wants the tubes out of her and to get out of bed.
Colin was finally able to come in to see her today. Even though he was prepped for what to expect he took on a look of complete shock when he saw her. He didn’t even feel he could get close to her. We know he’s very wrapped up in his sister even though he may not say it. The reality seemed to be just a bit much for him.
Tomorrow will be a full day for Chloe. She will see all the PTs and will have a workout. I don’t expect her mood to be any better after all that but, at least, she will be working her limbs. She was able to move her right side some today. That’s another indicator to me that she is going in the right direction.
It’s 2:30 am so I’ll keep this update short.. and I’m sure I’m forgetting some things. The main thing is that Chloe is a fighter. She is fighting everyone and everything. I say, Go For It Girl! The doctors can only do so much. Chloe is still in charge.
By the way… if you were on the receiving end of my teeth today please accept my apology. I’m hanging on by a thread as are the rest of the team members. My fangs came out way too quick today.
Blessings,
Ron
27 Responses to “Sunday 12/6/09”
By tim on Dec 7, 2009
Hello,
Thanks again Ron, and just wanted to say I am still here with all of you….
A silent prayer:
Give ear to my words O Lord, consider my meditation. Hearken unto the voice of my cry, my King and My God, For unto Thee will I pray. My voice shall thou hear in the morning. O Lord in the morning unto thee will I Look up!!
Thank you O’ Lord for you have said, you will hear in the day of trouble.
Tim
By Linda Wright on Dec 7, 2009
Thank you for sharing Ron. It has got to be hard to do when you are in the middle of all this emotion and pain for Chloe and Dana.
It does sound more encouraging, and we continue to pray for her complete recovery.
Her “fighting” is a good thing!
Love to all of you,
Linda and Clyde Wright
By Mother Lion on Dec 7, 2009
Hard job to write the day at 230 am….thanks. You captured so much of it. I think last night was the first time I raised my voice to “GET HELP” when her blood pressure rocketed after the intense look she gave me, the tear rolling down her cheek. I’ve never witnessed a person screaming to get out of their locked body. Until I did. Also, the nurse was spot on. She was OVERSTIMULATED by to much talk. To many of us in the room. I’ve got to watch this and handle it. No more 3 people in the room. NO. Its what she complained about last time(which occured to me finally). I’m sorry. She’s first. The rest of us have to get in line.
The Mother Lion roaring…….
By Sarah on Dec 7, 2009
Yes, Chloe’s a fighter. So are you all.
And, if I may say so, for heaven’s sake, do NOT, any of you, beat yourself up about anything. Anyone can see that Chloe’s best interest is the prime, motivating factor for each of you. Continue to do your best, and it will be enough. No one could ask for more.
Hope that made sense. It did inside my head, anyway.
Blessings,indeed,
Sarah
By Larry Sherman on Dec 7, 2009
This sounds like really good news. Healing is happening. I remain optimistic that she’s going to be in pretty good shape in the weeks to come. No doubt that she’ll need a lot of rehab. and time – and she’ll need to deal with a lot of frustration. But her family, friends and most importantly her spirit and strength will help get her through. Claire has volunteered to help her with everything she’s missing in school and even offered to talk to her teacher about letting Chloe make up her work so that she can join her classmates in 6th grade. So Chloe, and “team Chloe” are all ready for the fight. And Chloe’s body seems to be doing what it can as well! I remain very optimistic.
With love,
Your friendly neighborhood neuroscientist
By ronhorton on Dec 7, 2009
I love it Larry, TEAM CHLOE! What’s more appropirate than that!? Team Edward, Team Jacob… step aside… TEAM CHLOE is Steam Rollin’ in!!! Watch out world.
By Lyne Collin (Montreal, QC, Canada) on Dec 7, 2009
Yes indeed “TEAM CHLOE” is the best of the best !!! Let’s give out a big cheer !!!
YES WE CAN !!! YES SHE CAN !!!
YESSSSSSSSS MISS CHLOE CAN !!!!!
Lyne xoxoxo
By Judi Peterson on Dec 7, 2009
I keep you all in my heart, thoughts & prayers throughout the day. Thank you so much for the updates. They are so appreciated. Love, hugs, & blessings, Judi