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Sunday, July 6th:

July 6th, 2008 Posted in Daily News Post

Okay, I’m baffled.  I have no idea why yesterday’s blog did not show up.  You can read it below if you’d like.  Cyber something happened I guess. 

So here’s the Sunday blog, the one we’ve been waiting for. 

Chloe’s home.  About 3:30 P.M. today Dana was able to bring Chloe back home.  This now means she is in a much better environment to heal, as far as I’m concerned.  However, this also means that Dana’s job has really ramped up.  She will now be nurse, doctor and mom.  Chloe has her rental pump and her new pole.  She doesn’t particularly like the new pole as it is very light and wants to go where it wants to go, rather than where Chloe would like it to go.  I told her it just needed a little more weight on it to behave.  I can see her skateboarding around the house on it anytime now. 

We are all happy to have Chloe home but Chloe is pretty sad about leaving her friends and comfort of the hospital.  She grew attached to the people and the place.  She’s just that type of person, very caring, very loving, devoted.  In fact, yesterday when the roving music lady, Dawn, showed up to see if Chloe wanted some music, the answer was yes.  She wanted Dawn to sing, “A Bad Day.”  She did.  Then Chloe asked her if she could print the words for her.  She did that as well.  Just a few minutes ago, when she exited the bathroom, she asked Dana where the words were to the song.  Dana gave them to her and she went into her room and began singing the song.   

What does this say?  It says she is good enough to sing.  It also says she doesn’t consider today as good a day as the rest of us do.  That’s a pretty good perspective.   

She still has her feeding tube and will have until we are convinced she is able to take in enough calories to gain weight.  She has gained about five pounds since the operation but that has all been due to the continuous feeding.  The doctor wants her to look good before we make any changes.  She is looking better though.  She has some fullness in her face and her ribs don’t show as much.  When her arms and legs start showing definition I’ll be much happier. 

I asked her if Ivey went bonkers when she came home.  Her response, “not as much as when you come over.”  Made me feel pretty special.  The fun part was when Colin came home and saw her.  He lit up like the sun.  That was great to see.  

He confided in Dana that when he was downtown watching fireworks, he started to cry.  He realized it was the first time the three of them were not together for the 4^th.  Colin is a Holiday type of guy and having family together during any of them is very special to him.    

Before Chloe made it home Colin had made a welcome home sign and brought flowers for her.  He took some effort with this.  Soon after they were together again he had her downstairs playing her new X-Box.  Unfortunately she didn’t last long.  It was dinnertime and then she was ready for a nap. 

Dinner was pretty good for her.  She ate quite a bit of the lasagna.  It probably tasted good after the little bit of hospital food she ate.  It was good to be able to sit at the dinner table with all of us there. 

Dave and Ramona made it over shortly after Chloe got here.  We were able to go over the procedures for the pump that we are in charge of now.  The IV nurse will arrive tomorrow to go over those procedures.  They are a bit tougher than the feeding tube but we all should be up to task by now.  Chloe also showed Dave and Ramona her Hanna Montana balloon.  It sings a song when you tap it.  Well, Chloe isn’t a Hanna fan so she belts the balloon like it’s “Fred.”  Good anger management techniques I’d say.   

Chloe’s temperature was up to 100.1 tonight but that may be due to the meds.  She was also in a little bit of head pain.  Dana is watching her like a Mama Loon so I’m sure she will be getting the best of care.  Chloe has a bell and the intercom phone in case Dana dozes off and doesn’t here her requests.  I won’t be surprised if both sleep through the night, as they won’t have the hoard of medical nuisances waking them up every two hours.   

The plan is to keep Chloe home, get her off the feeding tube and PIC line and bring her back to the hospital in three months to make sure the remaining tumor is behaving itself.  Personally, I see that part of the tumor going away.  I am believing the next MRI will show nothing there.  That’s my belief and I’m sticking to it! 

Be well everyone.  Ron