Because We Love Her

Saturday, Jan 16, 2010

January 17th, 2010 Posted in Daily News Post

Chloe had quite a bit of secretions today and they were pretty thick. It’s a concern, as I feel there is a cold going on at the same time she has a staff infection. She is also up a lot more now so that will bring secretions to the trach more often. She handles it better than we do I think.

Saturdays are lighter than weekdays so we fill in the gaps. Dana was with her all morning and went to PT/OT with her. I wheeled her back to the room for her speech therapy. That is more about testing the sensory nerves in her mouth but swishing soda or tasting sour, etc. I thought I saw her tongue moving a little more today.

When I left to teach my class Dana wheeled Chloe around the unit. It’s their first laps of the stay. They even visited the Starlite Room before going back to 3502. She is also spending much more time in the wheelchair. The more we can get her up the better.

Her leggings were not tight enough so she did pass out at one point today during “homework.” As soon as they raised her legs she came back okay, but I’d rather not have her go away at all. It’s not fun to watch.

Sandy and Chloe were together most of the afternoon and night. Dave stopped by for a visit and I’m sure Sandy was able to get something to eat. Chloe has been emailing today also. I’m sure they found a place for the new MJ poster that Daniel sent her. She loved the note attached and lit up when she saw the face.

Dana was set up for a massage this afternoon. It was so needed and turned out to be just what the doctor should have ordered. Then she went home for a peaceful night in her cave. When she’s there she just wants complete alone time, no calls, no emails, no visitors, and no bells and whistles going off, just quiet. There is no wondering why on my part. She says she’s over stimulated. I’d say that is an understatement.

I’ll be over after church tomorrow morning and spend the middle of the day with them. I have another class Sunday night so I’ll leave before dinner. Sunday is even lighter than Saturday so the extra time spent with her is something we both need.

Be well,
Ron

 

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  1. 28 Responses to “Saturday, Jan 16, 2010”

  2. By Kevin and Laura on Jan 17, 2010

    Hey blog devotees: The photos that Sandy’s son (Chloe and Colin’s cousin) Jeremy, just added were taken by Kevin at the holiday concert that the Wilson High School Choral group performed last month. They had a great turnout. We were blown away at how good they sounded and how cool they all looked. The choral director seemed to be really enjoying his job and music. They sang traditional and very untraditional and even whimsical Christmas, Hanukkah, Kwanzaa, etc. arrangements. Colin is snapping his fingers second from left in the front row.

  3. By Sarah Koch on Jan 17, 2010

    Looking dapper, Colin!

    Sarah K.

  4. By dana watts on Jan 17, 2010

    Such a great photo…you can see how at ease Colin is with performing.

  5. By Lindley on Jan 17, 2010

    Colin!!!

    You look SOOO good up there. What a handsome young man you are. I’m betting you have loads and loads of fans.

    I’m ‘way up here in Canada and have not seen a video of your performance (hint, hint – anyone want to put a link to it if it’s online??); however, it looks like you have such talent!.

    Oh yes this is Chloe’s blog, right – Hi there Chloe and the rest of the family. I love the progress you’re making. Sounds like it is much faster now.

    Cheers, Lindley (a friend of Sandy’s)

  6. By Rev. Barbara on Jan 17, 2010

    Yes, Chloe’s blog, but WOW! Colin is so handsome! Can’t wait to hear him sing at his next performance. Let us all know so we can support him as well! Much love, Barb

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