Because We Love Her

Tuesday, Jan 19, 2010

January 19th, 2010 Posted in Daily News Post

This wasn’t one of the better days, however, we are well aware that there are pits and valley along this long road. This was not the deepest pit but it was uncomfortable for her most of the day. The granuloma that builds up by the body to fight against a foreign body, sometimes grabs at the plastic of the trach and causes sharp, shooting pains for Chloe. Today was one of those days. In order to get rid of the granuloma they use silver nitrate. This essentially burns the substance off the body and cleans it out. It, in itself, can be painful so the preparation for treating with SN is precise. Tomorrow is scheduled for the procedure, which only takes a minute but can hurt. We have the correct meds on board for her though so we are taking all steps to keep her comfortable.

When we went to PT/OT it was tough for her as she needed a lot of suctioning and also had the pains whenever she moved. Dr. Shih ordered up some oxicodone to help her get through her workout. It worked out.

Up in the room Sandy met us. She was staying with Chloe while we went to the meeting of the staff. We didn’t have much to say today but just caught up on the insurance proceedings and a review of Chloe’s progress. We will be pulling the nose tube back a bit so it will now empty into her stomach. This should help her feel as though there is actually something in her stomach rather than just nutrition going directly to her intestines.

In OT she drew a pretty cool picture that is supposed to look like a stained glass picture when she’s finished. Not so sure about that but it was a pretty cool design. Maybe the works for her next shirt, who knows…

Colin had to go have toe surgery today as he’s been fighting an infection for a couple years that I know of. And Ivey had to go to the vet yesterday for shots. She got a major reaction to flea bites and lost a lot of her hair. The rest of us better stay healthy as those around us are falling by the wayside. We are trying to figure out our break times. Sandy will be able to sleep in a few days as we have her on night shift relief at this point. I’m going to pull some more night shifts so Dana can get some relief. And Kevin and Laura are on standby for some dayshifts to keep us all sane. If nothing else it’s interesting.

Thanks to all of you who have been helping out with various things throughout this ordeal. It is not un-noticed and very much appreciated.

Be Well,
Ron

  1. 53 Responses to “Tuesday, Jan 19, 2010”

  2. By Larry Sherman on Jan 19, 2010

    Hope that Colin’s procedure went well! Hope that Chloe stays as comfortable as possible for hers. We all love the shirts!! We plan to buy a family pack…. All our love, The Shermans

  3. By Rev. Barbara on Jan 20, 2010

    I sit here at my computer and outside there are two little squirrels leaping around in the huge fir tree. I am reminded that Chloe will be doing the same thing soon (ok, not in the trees, but leaping nonetheless!) I see her energy increasing and how she will physically be dancing and singing! Oh so beautiful! Much love and lots of HUGS! Barb

  4. By Erika Collins on Jan 20, 2010

    All my best for a quick recovery for Colin. Chloe’s days remind me of the life of Sojourner Truth. She risked everything and kept going back to make things right. Chloe has her own “sojourn” going on right now and is indeed, so brave.

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