ChloeWatts.com

Wednesday, February 3, 2010

Although Dana didn’t get any sleep last night Chloe had a pretty good day over all. As usual she started out tired but by the time I was here in the afternoon she was kickin’ it. She is doing well off the mist and just on the nose, which is always good.

When Dana left for the evening she was shot again. It doesn’t take much when you go two nights in a row without sleep. I’d love to just go every other night with her but she just can’t leave that often. It would also be hard on Chloe.

Tonight Ms. C was pretty tired. We watched Monsters vs Aliens but she was fighting to stay awake. Like Mother like Daughter I guess. She stirred enough to take a walk with me at 8 PM. After that we played beach ball for about 45 minutes. Her accuracy is pretty good. The longest run of getting the ball right back to me was with alternating hands. She went 8 times in a row of perfect hits.

Dr. Steve stopped by just for a chat earlier. He just had a few of the normal questions. Then we are getting close to the new belly tube procedure. That will be 10 AM on Friday. Dr. Peter Scott is on board for the anesthesia. It’s always good to have friends on important teams.

Thank you to all the people who have responded to Karen Preston’s request for members joining Helping Hands website. This is for food delivery only. It’s an important function while we enter week nine. It’s crazy to be so nuts about food when the one suffering the most can’t eat at all. But it’s something that helps the caregivers during a time when we are all getting fried.

Cough assist is something we ask for every night before sleep time. I’m just so fed up with RTs. They come in and say they’ve worked with Chloe before and then they do something stupid like try and turn her in-side-out with the pressures on the machine. It was removed from the room today so the pressures were changed. The RT wanted to argue with me that her pressures never change. Then I had to tell her were the pressures were set. I’m sure it’s written someplace…. Not! These are RTs I’m talking about. There are very few that I have any respect for. The rest you have to watch like a hawk. And even then they pull something other than what you just told them. Aaarrrgggg! And I don’t have a good source to complain to about them. Their supervisor is the first one I asked to be removed from our room. The complaint we got was we are limiting the ones we will accept. We’ll, my solution to that…. TRAIN THEM. Every one of them does it different.

It’s not a good idea to tick me off when I’m writing the blog.  I guess it’s going to be a long night.

Be Well,
Ron