Saturday, February 20, 2010
February 20th, 2010 Posted in Daily News PostChloe’s schedule was full today and she was in good spirits. I didn’t have any specific reports from Dana so that almost always means it was good but not spectacular. I do know they spent a lot of time in the sun. Chloe even has a little color now. When I arrived at close to 4pm they were both in bed watching The Wizard of Oz. It was actually one of the easiest departures for these two.
Today was Dana’s day to play as if she were home alone with Chloe. She was responsible for everything. So when I got here she set out to complete her last duty of setting up the feeds to be started at 5 pm. She did spend some extra time with our good RT and found a variety of things to do in case of an emergency. She feels much more confidant now.
At about 5:30 Dave showed for his visit so I had an early break. They are reading another Twilight book. About 6:40 I was back on duty… a rewarding duty I might add. She needed a thick suction while I was away but they handled it well.
As soon as I got back she asked for a bathroom break so I got her traveling things ready. When she came out I directed Tracy and her to the chair. I announced that we were going for a walk and Chloe was all for it.
We took off for areas unknown. She wheeled herself for good periods of time until her right hand would get sore and I’d take over. We went to the sky bridge on the third and then fifth floors. Up there it’s high! She wouldn’t stand at the railing there and even wheeling close to the glass railing she was a bit timid. We then went to the locked doors of the rooftop helioport. We decided we need to find someone to escort us up there ASAP.
Then we were off to the downstairs atrium where she motored around the large tree pots. We were looking for a solo wheelchair so I could show her some wheelies but they were being too well guarded. Maybe tomorrow. But we weren’t done yet. Off to the spooky elevator by the café. This elevator reminds me of the first one I ever rode in NYC. The button and numbers gage are the same I’m sure.
We went to the mid-level to look at some really cool black and white pictures of years gone by. Even saw Pres. Roosevelt at the Bonneville Dam. Chloe reminded me she was there last year with her class. I’m sure they had newer cars than what is in this picture. Just after looking at that picture we were attacked by the giant bogger. It came quick but I was able to get it in pretty good time. In any case we were in good shape.
We closed the journey off with our trip to the piano. We spent about a half hour in there figuring out what songs we knew. She’d play one and I’d try to jump in on it and then we’d reverse the order. It’s great to see her trying to make that right hand work the way a real player uses theirs. It’s a fun therapy for her.
When I realized it was just over 8 pm we had to hurry back upstairs as Harry Potter was on TV tonight. We can’t have her missing that. It was bad enough we missed Grays’ Anatomy this past Thursday.
Thanks to all of you for the help, meals, prayers and just plain old fashioned support.
Be well,
Ron
116 Responses to “Saturday, February 20, 2010”
By Rev. Barbara on Feb 21, 2010
I can just see the twinkle in Chloe’s eyes as she motors on her own! Independence is a wonderful thing! You go girl!! Much love and a huge HUG! Barb
By dana watts on Feb 21, 2010
as this lovely evening was happening for chloe(despite the ‘thick ‘ suctioning…and boy those are sometimes scary for her..just to look at her crumpled forehead you would know…)
Colin and I had a fire going in the fireplace and were looking at spoooky youtubes of ‘ghosts’ and other stuff he’d been collecting for me to see and hear about. Im learning to communicate better with colin by shutting up every 2 sentences or so…..gives him time to THINK….then time to respond. He is thoughtful this way.
Learning to shut up. Theres magic in this.
I found him in bed this am with a box of cheese its and ivey guarding them both. I’m sure Ivey is happy to be ‘at work ‘ again.
Also,
I dreamed of Chloe eating last night!! Easily!! It was intertwined with a dream of my old Dodge car..something(the entire inside of the car…no seats in other words..it was a shell of a car) was taken away inside it…and then given back later in the dream. My mother was in the dream as well. End of dream.
11pm last night someone phoned and I was AWAKE immediately and the adrenaline dumped. Everything still feels like an emergency. When I said hello, the person just coughed but didnt hang up….i put em on speaker till they hung up.
Colin looked at photo’s of he/chloe when they were about 2 and 5 yrs old. Dressed up in easter bonnets(both of them) and in the firemans car sharing a cracker..it was in her hand but he was gently taking bites of it and she was letting him.
Sunny days ahead. Just gotta go thru this to find the sun.
This seems alot to share. I am supposed to. Someone has information for me. Something I am to take a closer look at. Thanks to you in advance.
me