ChloeWatts.com

Sunday, February 21, 2010

Chloe is getting very good at sleeping through suctioning and I’m okay with that 100%. Now if I can just figure out how to sleep through it myself we’ll be all set. It’s getting better though. She only needs major suctioning about 3 to 4 times a night rather than every hour. In fact today she slept right through to 11 am. Amazing.

I had my paper, my tea, my shower and etc. by 8:30, and then I was bored watching her sleep. Dr. Steve did show up about 8:30 to talk about the night. He’s still uncertain what to say about the thick secretions that start about 11 pm and progressively get thinner over the hours. Like he said though, so much is controlled by the brainstem that it may have something to do with it.

One thing different overnight was Chloe was either having a reaction to something or having bad dreams. I’ve never seen her so animated while she was asleep. It was like she was itching all over and wringing her hands together like she was fretting about something. She didn’t even remember it in the morning.

Before I forget. If you have been one of the many generous folks to bring food by for the overnighters, please let us know if you have a container we need to return. Many of the items are left when we are at therapy and they don’t have names on them. We’d love to get these back to you but have to know what belongs to who.

Dana walked in about 1pm. She spent a good night with Colin and Ivey. They even had a fire in the fireplace. Very cool. And right after she got there Annette and Marie showed up, followed by Tanya Gaddis, a teacher at Bridlemile Elementary. It was a pretty lively visit.

There is a meeting at the school tomorrow morning to discuss what “needs” Chloe will have when she goes back to school. Even though I’ll be filled in by Dana, it would have been gracious of those arranging the meeting to invite me. Based on what they called me it’s obvious they received some very inaccurate information about my relationship here. At least Dana, Chloe and Colin know. That’s the important thing.

The cool thing that happened tonight was made possible by C.N.A. Tracy. There is a choice here of a shower or a boat bath. Well, Chloe is a bathtub girl and tonight she made it be known. So Tracy said, why not. She found a bathtub and even some bubble bath. Chloe had a long soaking bubble bath with a showerhead spraying party that made her day. At home she spends an hour in the tub if we let her. So this was a good reminder that “there’s no place like home,” but there’s sometimes something close.

Chloe and I are spending the night together again tonight with our nurse… Ron. So she will have two of us watching closely over her. What more could she ask. She’d say, Mama… but that’s always her request.

Thanks for being with us.

Be well,
Ron