ChloeWatts.com

Monday, March 8, 2010 – 2 Days, 1 night left

Oh so close. Two days! And figuring out what we will do at the house is the challenge. Today we received our suction machine. Tomorrow we are supposed to receive our oxygen and feed machines, along with many other supplies. This all depends on timing, as Dana can’t be at the house past noon due to things going on at the hospital. Whew.

Tomorrow is a big speech therapy day. We will try the E-Stim unit again to see if we can get a swallow to happen. This is key to getting Chloe to be able to eat again. She and I will wear it at the same time so that we can match my sensations with what she is feeling. Her feelings may be confused with all that has happened to her and she may not be feeling exactly what she should be feeling. Don’t try to make too much sense of that statement but it makes sense to us.

Tomorrow we also have our last full staff meeting. This will be a pre-discharge meeting. There should be more plans put in place then.

And lastly, tomorrow is trach change day with the next, new trachs. These are actually the ones we wanted the first time but weren’t completely successful in getting the message right. As of today these new trachs were “on the dock” in Indiana. They were to be overnighted to us for the change in the afternoon. We’ll see.

Looking at what we need for the house we seem to be getting there. One very big thing we need, that we are hoping to be able to borrow from someone for a couple weeks, is a good baby monitor. We will have an overnight nurse but she will have to hover over a sleeping Chloe if we don’t have a monitor. We’ll buy one when we can get out and about but for now a good loaner would be wonderful. If we aren’t at the house and you have one to loan, please put your name on it and leave it in the cooler at the front door of the house.

Thanks for all you do and for all you’ve prayed for. We are on the way home. This should be a big step in her recovery. The miles now seem shorter when we look to the future.

Be well,
Ron