ChloeWatts.com

Saturday, March 13, 2010 – 003 PH

She’s lovin’ the idea of being home, however, it’s been a conflict.  Although she is home she still needs to do things to get better.  It didn’t turn off when we left the hospital.  It’s almost like she thought she would be stepping into the house whole and complete.  Slowly, she is coming back to reality.  The more she works the faster she will regain everything, including the ability to swallow and eat.

Night nurses were a big downer for her until Dana and I both discussed it at length.  Without them we would have to stay at the hospital.  The two of us can’t do it all and she fully realizes that… maybe doesn’t like it much…. But realizes it.

We spent the second night with a nurse at the house.  In fact, last night there were two, as one was training so there would be a smooth transition when she takes over in a couple days.  There is focus on details all night long.  Keeping Chloe safe is our number one concern and we feel that is being realized.  We are also getting some good tips from nurses that have done the home care for a while.

Supplies will be adjusted to fit our needs.  Some were delivered that we didn’t need and others need to be exchanged.  The company supplying these seems to be working well with us.  They probably see a lot of parents that come home just fried and need lots of help and compassion.

Chloe is having a ball at the house.  She has been up and down the stairs many times.  Down on her butt and up on her feet with help.  Around the levels she either uses her walker or scoots on her butt.  She’s trying a lot of different ways to become independent.  The only place we definitely don’t leave her alone is in the tub, and she does enjoy her baths.

Tomorrow we are hoping for sun so she can get outside.  It was dry today but cold and there was a lot going on so we stayed in the house.  The wheelchair ramp is complete now, with anti skid strips, so we are ready to roll.  I’m still considering what to do about the deck and getting her in the back yard.

Those of you who have been helping with meals have been a God send.  Larry came by with a meal and baby monitor last night.  What a great gift of each.  It’s been a while since we had a good Greek meal.

Colin has been around also.  When he headed out to go to his dad’s house, Chloe stuck out her bottom lip.  I think she really enjoys the whole family together.  She even played tug-o-war with Ivey for a half hour last night downstairs.  It’s probably the most exercise poor Ivey has had in three and a half months.

All’s well tonight.  Hope it is with you also.

Ron