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Wednesday, March 17, 2010 – St. Patricks’ Day

Just when you thought it was safe to leave the ladies alone for the night… Dana loaded the feeds for 10 pm. Five minutes later the stretched out feed tube leaked all over Chloe and the bed. The entire bed needed to be changed, Chloe’s cloths needed to be changed, and the bag needed to be reloaded with feeds and meds. By the time everything was back on schedule Dana noticed it was after 11 pm and the new nurse wasn’t here. Then the phone rang to let her know she was on the way. Dana was just about to crawl in bed with Chloe for the night when the nurse finally arrived. Then it took a lot of time to get her briefed. When I last emailed with Dana it was past 2 am.

The morning came way too early. After getting the nurse out of the driveway, Dana was back inside getting Chloe ready for school. Our other school nurse was with Chloe during school and everything went very well. However, the tube had been leaking overnight and during school, so Dana called Dr. Marshall to see if we could push up the procedure to get the “button” placed so she wouldn’t have the external tube. That wasn’t possible but he did agree to meet us at 2 pm to get the tube fixed somehow.

At 1:15 the bus pulled up to the house and we transferred her directly to the car for the trip to the Dr. office. That all went well and we got to the office with 10 minutes to spare. Chloe’s eyes got a little big when she saw the doctor come in with a pair of scissors in his hand. At first he suggested just kinking hose but I asked if there were replacement ends and clips for this. He said of course and went to get them. It was a quick fix once he got back.

Chloe took the offer to go to the other house and see Kitty and walk in the grass. We didn’t have a lot of time there but it was a nice visit, although Kitty was not impressed. Leave it to a cat.

We were back in the SW in time for Oprah. Dana wanted to see a featured story. Then we watched Dave Ramsey. She is very happy to have Dish TV as of yesterday. I’m dumping it from the other house so we can have it here now. With this house the “prison” we needed something to help pass the time.

Later Sharon M stopped by to bring Chloe a Lilac Tree and a book. We had a great visit and Karen P stopped by with some corn beef and cabbage for St. Patrick’s Day dinner. Tomorrow Chloe is planning on doing some cooking for us. We’re all for it if we can have her on her feet.

After homework and computer games Chloe is now winding down for the night. We are waiting for our nurse, “E”, and plan on having a good night. Tomorrow will be Chloe’s first day at school without either of us. We have confidence in the “at school” nurse so we plan on just chilling for a change. Soon we will have Chloe going from 11 until 2:15. Then it will be on to a full school day as her energy builds up. Of course, then we will be starting our PT/OT/SP at OHSU. That will be interesting coordinating the transportation as it takes two of us in the car to transport her safely. One to drive and one to take care of the suction machine. Even on the way to the doctor we had two incidents needing the suction machine, one there and one back.

Colin will be home tomorrow after his Choral Concert. I plan on kicking Dana out of the house to go to that. I’ll have one student earlier but then I should be able to be with Chloe for the evening.

It’s never dull.

Be well,
Ron