ChloeWatts.com

Tuesday, July 15th:

July 16th, 2008 Posted in Daily News Post

UPDATE:  We have the air conditioner!  Wonders work quickly when you have such a spiritualy wonderful team!

Chloe is home!  Dana was able to drive her home about 3 P.M. today.  That was after an entire morning of reassuring Chloe that being at home did not mean she would get sick again.  She was pretty scared about going home after what happened Saturday.   

The team went to work on her and between the Doctors, nurses and Sara she agreed to give it a try.  So Colin, Lee, Dana and Chloe all WALKED to the car from the third floor with all Chloe’s stuff.  It’s a pretty good hike but with the energy she has shown these last few days I’m not surprised she made it okay.  It did wear her out but that’s a good thing for hot car rides. 

She had a little battle earlier however.  She was trying to be the controlling factor with regards to her treatment.  As I said last night, we were instructed to be the Nurses for Chloe.  We are to make sure she has the feeds going, that she drinks plenty of water and that she is up and about as much as practical.  That was being done when she hit the wall.  So we gave her the space needed for her to get mad at us.  That only lasted a little while when she was back to Chloe.  I think she was testing us to see if we were really up to the task.  Dana was the lead Buffalo for sure.   

After dinner Chloe wanted to go outside.  It is extremely hot in the house.  (In fact, if anyone has an old air conditioner they aren’t using it would be put to good use in Chloe’s room.)  So we went to the hammock to watch for the resident bats to do their Arial dance.   

Dana was cruising the grounds while Chloe and I sat there.  She was in a pretty happy mood and I told her how proud I was that she was putting so much effort into getting better.  She replied in some polite way that I don’t really recall but I told her she really scared the bageebies out of me on Saturday.  “It was like you would have a couple good days and then come up and hit this firewall and slide backwards.  Then you’d get up and run toward the wall again, only to be knocked back again and again.  Then on Saturday you hit that wall harder than you ever have before and it knocked you flat.  I didn’t think you could get back up again.  Then, sometime in the early hours, you got back on your feet, put a determination in your heart and ran toward that wall with a vengeance.  You not only hit the wall but you shattered it into pieces that would never be put back together again.  Then the good days started in high speed.” 

Her reply?  “I couldn’t leave because one more death in your life would crush you.”  What could I say?  I think it was something like, “When Kitty leaves in another 12 years I’ll be crushed.  I’m glad you are a fighter.”  She is just way too old for her age. 

While we were there we decided she needed Angel Hair Spaghetti, as the regular stuff is just too thick, especially with a tube in her throat.  We need Prego Spaghetti sauce and we need root beer floats.   Later she added the little cheese and cracker spreads that you use a little wooden spoon to spread with. 

There were a couple glitches in today’s world but nothing earth shattering.  They left the hospital with a list of meds to get at the Rx.  However, what they were not told was that one of them could only be purchased right away at a retail pharmacy.  The only place that wouldn’t have to wait 24 hours would be a Hospital Pharmacy.  So, in a panic, Dana called me to see what to do.  I went to Emanuel and had to talk the pharmacy into fixing the problem of too many Rx slips floating around so that I could get the medicine and bring it over to the house.  It all worked out. 

Colin hit the wall tonight.  I think he is overwhelmed that Chloe is home… also that his world isn’t quite the same as it was before the thing in her head.  So we are going to have to be sure to afford him the attention he needs as he makes the adjustment from little boy to teenager.  He has shown us he is willing to take on more responsibility but he still remembers how easy it was to be younger. 

Koodos go out to Paula.  She’s a LMT who has a mutual good friend with Dana.  She offered and then came over this evening to give Dana a 90-minute massage.  This is a treat that was more than welcomed.  She even gave Chloe a foot massage afterwards.  Paula has seen, first hand, a critically ill kid of her own and knew she had to come over. 

Dana has someone in the wings for the next massage.  It will take more than one to put her back together after sleeping as long as she did on the windowsill bed in Chloe’s room. 

I’m sure you have looked at the most recent pictures.  Chloe has wonderful hours.  She still wipes herself out but recognizes she needs to build up her body and it takes exertion.  The yeepie scenes were over the word that she could actually have the dog visit in full contact.  There were some concerns but Swamp Fox put a stop to those.  He is the one in the dark blue shirt with Chloe.  Sara is the happy one next to him.  What a team! 

We are going to do everything we can to keep Chloe in a Spirit High.  If all she needs the rest of her long life is an MRI every six months we will be Very Happy.  I believe, along with the firewall she shattered, the thing in her head is being shattered by her will and our love.  Nothing negative could live here. 

Blessings, Ron.

P.S.  You do realize that if you  double click the pictures you get a nice big view of the wonder girl.