ChloeWatts.com

Saturday, March 20, 2010

It’s morning now and Dana is still asleep, something that doesn’t get to happen often. Chloe has been up for about a half hour and I was up to see the Nurse Joanna out the door at about 7 am. Chloe’s night was more active with five suctions and lots of de-sating beeps going off. When watching her I have found she tends to sleep like me. She breaths as a convenience and not very deep. This leads to her not getting the 100% required O2 levels and the beeping. Then she takes a couple good breaths in her sleep. She just nodded in agreement.

Yesterday went well. She made it to school on time but without the charger for the suction machine. We noticed just as the bus pulled away from the house so I jogged up the hill, getting there as they were unloading her from the bus. It seems crazy to have the bus bring her that little distance but with all the equipment and the steep hill, it’s really necessary. I’d love to have a Club Car EzyGo Golf cart. Then I’d just drive her up the hill myself and save the aggravation of the school bus. It would probably just be one more thing we don’t have any idea where to store. We are looking like a hospital her lately.

Later in the day she spent time doing homework. With Colin back home it’s dueling schoolwork as before. Chloe has kept up well with school, except for math, but we do have a lot of material to complete over spring break. Colin has created a situation for himself now that requires having constant supervision. It will probably help him get back on track with his schoolwork, something he really wants to do. It’s not surprising there have been slips over the past four months.

The evening was good with Kathleen and Tim bringing in a great dinner. Laura and Colin took Dana’s car out to the carwash bay and cleaned it all out. It shines like a new 1992 car now. My next project for that car is to replace the lift rods for the tailgate. For some reason or other both of the tailgate lifts in Dana’s cars were replaced with ones that were too short. She drives one and the other is in the garage wanting to be driven someday. Whenever I try and get into the back of either car I end up with a concussion.

A good friend has organized a movie event through her company. Originally it was just for the sake of presenting a great movie. However, after thinking about it, she asked if she could make it a fundraiser for Chloe and Dana. This took a lot of consideration on our part, as there were a lot of balls to juggle and feelings to protect. (That’s another story.) Finally we decided it was in the best interest of Chloe and Dana to let Trinity “give” as she wanted. So please click on this link to get all the information. http://www.brownpapertickets.com/event/101267 We do remind you that this is not our fundraiser, so we are unable to answer any questions what-so-ever. Our fundraiser is still the Chloe Watts Peace Sun Tee Shirt drive. They will be available for quite some time and will be printed in colors soon.

It’s time to get this day rolling. From what we heard on the news we only have today for Sun and fun until Tuesday. After being inside the hospital for 3 ½ months we hate to waste any sunny days!

Forgot something… If anyone is good with a sewing machine we need a half dozen cloth sleeves for the suction tool Chloe uses.  It’s 9″ x 2″, sewn on all but one short end, and has to be something we can wash.  She is not a “Pink Girl.”

Be well,
Ron