Because We Love Her

Thursday, March 25, 2010

March 25th, 2010 Posted in Daily News Post

It’s been a few days since you last heard from me. My work life has changed a bit for the next couple months. The census hired me for the most boring job I have ever signed on for in my life! Oh well. At least I’ll be able to name my own schedule so that I can still be on the Chloe team.

She seems to be getting a cold. Her secretions have been very thick. This means that her trach plugs and she can’t breath. Scary until she can either clear it or we can get the suction catheter to punch a hole in it so we can grab it. There should never be a question that she needs 24/7 care with this type of thing in her present. Until the trach comes out this will be our world.

Yesterday Dana reported something kind of cool. Chloe was downstairs watching some school required videos. When she didn’t think she was being watch she decided it was time to stand up. So she did, and put her hands on her hips while watching the movie. She sat for a while and then repeated the process. She wants so much to be able to do what she could on December 1st. It’s just such hard work for her to get there.

Today Dana put her in the car for some errand running around. They can only get out when they are only going on roads that Dana can pull to the shoulder quickly. If Chloe needs suctioning it’s usually “right now!” Thus, when we need to go long distances it is a two adult job. Well, they went to the video store. Chloe went in and met the manager who had a similar situation himself once. He heard her story but today was the first time they met. Unfortunately Chloe still doesn’t want to be seen in her condition anyplace near her home. She is so against anyone seeing her walk like she does. Although she did take some steps yesterday.

This weekend we hope to get out some. Saturday is supposed to be sunny so I’m sure we will go someplace. Maybe we’ll go to the water and let her feed some ducks. The more normal things she does then the more normal she’ll likely feel.

We are scheduled to get the feeding button on the 31st. This will be a great change as even the new tube end we had placed last week is leaking if we don’t tape it. When that happens it’s a floodgate and everything needs to be changed. Not fun.

I hope to have a very happy blog report at the end of the weekend.

Be well,
Ron

  1. 167 Responses to “Thursday, March 25, 2010”

  2. By Wendy Isaac on Mar 30, 2010

    Hi Chloe and family. You must really be enjoying being home. Let’s keep our fingers crossed and that the sun will be here again soon. I do have a new puppy now, his name is Jose and we are a very good match. He is really tired of the rain, has really short legs, and when he has to go potty it is like trying to do so in a swimming pool!! He is hoping for sun again too. With much love and many blessings. Wendy P.S. I will send your mom a photo of Jose to show you.

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