ChloeWatts.com

Friday, April 2, 2010

April 2nd, 2010 Posted in Daily News Post

We’ve been busy and things have been as usual, so I’ve not updated the blog in a few days. This is the planned course of action as we move forward into complete health. However, Dana called me all excited and wanted me to know she called the MRI doctors. She didn’t want to go through the weekend without knowing the results. I don’t know why she didn’t just call me first since I could have saved her a lot of trouble getting through to someone… but she didn’t. So after getting the ‘wait on the phone’ angst she finally got to talk to someone who would actually tell her something.

The MRI showed no changes, other than the surgical healing everyone has expected. Maybe I didn’t sound too excited and I don’t think I was. Yes, I’m extremely happy but it’s not anything that I didn’t already know. It’s been sooo obvious to me that the “named” problem is well behind us and we are now working on the problems at hand, getting her tongue and vocal chords to work so she can eat again, and we can also have real conversations with her. The walking part is coming along as well and she show us all the time by jumping to her feet and standing there on her own and moving around the house with her walker without us following in hover mode.

Dana was also excited about the fact that Chloe’s tongue is now clearing the teeth by a little bit. It was a few nights ago that I first saw this. Now THAT’S exciting to me. My goal for her is a couple more weeks and she can stick her tongue out at me. I’m her punching bag for her PT/OT workouts and I’m more than willing to be her tongue target as well.

Last night we all went out, as a family, complements of Larry Sherman, to hear the wacked out play at W. Sylvan Middle School. Chloe really was depressed about going. Apparently there was a birthday party at school earlier and watching everyone else partake in the treats and all, was just too much for her. She hit the wall and was depressed the rest of the day. So when Dana insisted we go she really was reluctant. However, once we were there and she saw that she wasn’t the center of attention, things went much better. She started getting into the play and clapped with every ending of scene and song.

Of course, right before the opening curtain she required an extensive suctioning that seemed to go on forever. Then she made it through the first half uneventfully. There was a snack area that we were invited to in order to get our pizza and drinks. We took turns going and eating while the other was with Chloe. Just before the second half there was a little boy that came over to Chloe. He was probably 3 years old. He did the curious stare and finally asked “what’s that thing on her neck.” I tried to just do a mild answer but Chloe kept giving me the cut off sign. So… being it was April 1st… I just said, “she had her head cut off and we put it back on with some glue.” Chloe about wet herself and the little boy just looked wide-eyed and went back to his grandma.

Just as the lights went off Chloe needed some suction. It was probably payback for my statement to the poor little kid. Oh well, my bad…

We made it home with not further events and Dana and Chloe went downstairs to watch Gray’s Anatomy. Things look better on the TV that is downstairs now. Dana had saved for three years to buy something more appropriate for the downstairs family room and, with some help from Dave Ramsey, other sources, and a great deal from Randy Wenger on Beaverton Hillsdale Hwy, we were able to have it hooked up yesterday. So if you’re looking for a TV please check out the Vern Wenger TV store and tell Randy that Chloe sent you.

Colin continues to be a huge assistant when it comes to the need for suctioning. Dana can now go outside or take a bath or just be out of earshot from Chloe without worrying too much. Colin seems proud to be a part of this and Chloe is happy to have him as Doctor Suction when needed.

Wednesday we will be going to a service with Barb that will promote the fundraiser for Chloe on the 10th. It is a showing of the new movie “Dreamcatchers.” Trinity was going to show this movie anyway and decided it might just be a great event to help Chloe and the family out a bit. Dana is still out of work, and will be for some time, so her savings will only last so long. If anyone has any ideas for good home based jobs she might be able to take on please let us know. The contact page here is a great source for that type of thing.

Dana is bummed out tonight as Michael Buble and, also, “Two for Fighting,” I believe that’s the name of the band, are both in town tonight and she’s at home. She vowed that if MB ever came back to town she would be there. I didn’t get on it soon enough but I did try today to get her a comp ticket. The other band is a favorite of hers and they are also playing at the Crystal Ballroom, a place I’ve told her we would go someday. This would have been perfect. It looks like both events are now on the “next time bus.”

We have ordered some more Chloe Watts Peace Sun Tee Shirts for the fundraiser. We now have White, adult Chestnut and kids blue shirts. Special orders are accepted but we need a minimum order to get some of the colors.

Hope to see you next Saturday.

Be well,
Ron