Because We Love Her

Monday, Aug 23, 2010

August 23rd, 2010 Posted in Daily News Post

Gee, you’d think with all our spare time I could get the blog updated more often…

Dana, Chloe and I went to a celebration of life on Saturday. It was for Dana’s second mom while growing up in Albany. We all met at James’ house and it was great to see Dana mix with all her old friends. Chloe also had an old friend there and they spent a lot of time together. At the end of the night Chloe made sure she had Haley’s email address.

When we got home that night, Tim had been there with a surprise meal for us. Those two are just amazing. Wait until we can pay it back. It’s going to be a spread for sure!

We will probably have the new trach this week. We have been waiting but it’s like a lot of things ordered. It will either be wrong when in arrives or it will never get sent. Steve has one at the office we can get if we need it. This time will be another downsize. Hopefully the next time it will be out and sealed. There will be a swallow test soon to see if they think swallowing will be helped by nixing the trach. That’s our hope.

Chloe is walking better each day. She still isn’t ready to go long distance solo yet but she is doing much better. Her goal is to walk the halls of Robert Gray Middle School without looking different. She’s getting close.

On Thursday Dana brought Chloe to get her hair cut and styled. It made her look like a teen! It’s really a good cut and she’s having fun with it. She is also having fun with makeup and fashion. They went to Kohls and bought school cloths. Between her new wardrobe and her new cut I’m afraid the boy factor will be going up by 90% when school starts. It should also help with any problems surrounding the “difference factor” she worries about.

Tomorrow will be another Steve visit. The E-Stim has been used each visit and we think it is helping. “We” being Dana and I… as Chloe doesn’t really like it much. When I tried it I found that there is indeed a point where it goes from prickly to clenching. The clenching is what simulates a swallow.

Jobs searches are in the making for Dana and me. We both need to get back out there in the work environment as soon as possible. The amount of income is not equal to the amount of outgo so it’s time to change that. Dana was completely heartbroken when she found out she didn’t have a job to go back to. It seems that Dr. Duncan’s practice has dwindled and there just isn’t any money to bring Dana back with. It wasn’t just a job for Dana, it was her family. She really has a special place in her life and heart for those people she worked with. So, if you need your teeth worked on please consider his office… or if you hear of a great position needing to be filled, let us know.

Colin is back from Canada now and I’m anxious to hear the many stories he’ll be sharing. He always has great visits up there.

Be well!
Ron

  1. 4 Responses to “Monday, Aug 23, 2010”

  2. By Kari, Make-A-Wish on Aug 27, 2010

    Photos of the new hair cut are in order! 🙂

  3. By Kat~ on Aug 28, 2010

    Chloe looked SO beautiful at the Celebration for my mom. I was stunned on how grown up she has become. That tad bit of make up and her beautiful smile so warmed my heart. Dang, hate them all growing up, but boy, it’s so awesome to see !! Chloe, you have nothing to worry about in middle school. Not with your sweetness and glowing personality. Your spirit is catching !!
    New hair cut, woo hoo. Just promise you won’t grow up TOO fast, lol {makes me feel old}

  4. By Chester on Aug 28, 2010

    Saw your beautiful picture in the Oregonian this morning! You are amazing…enjoy this time! Hope to walk soon!

    Chester

  5. By ronhorton on Sep 4, 2010

    Thank you Patty for sending the Saturday paper with the picture in it. That was fun.

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