Because We Love Her

Sept 4, 2010

September 4th, 2010 Posted in Daily News Post

Chloe and Dana spent the night at Good Sam’s last night for the second part of the sleep study to determine the course of action for Chloe’s central sleep apnea. The night before she went 40+ seconds without breathing and scared the nurse to the point she almost bagged her. She was starting to turn blue and wasn’t rousing so it’s time to figure out what to do. Up until that night things were not enough to get excited about.

When we got to the hospital last night the tech that was to do the test seemed like a pretty good guy. However, there was one point that he stormed into the room and accused Dana of waking Chloe. It was a trying moment but I guess he realized his actions later and tried to smooth things over. It was a little late for Dana by then. Neither one of them slept, as was evident with them coming home and crashing for five hours.

School starts on Tuesday and you wouldn’t believe how hard Chloe is working to get herself in shape to look “normal.” She is trying to excess as her butt found the floor once and really surprised her. Thankfully she didn’t get hurt although it was a pretty good drop; Too quick for anyone to have stopped it.

We are waiting for Jeremy to arrive. He’ll be spending the night before heading back home to Canada. He’s good energy around everyone so it will be nice to see him.

The swallowing hasn’t changed any, although she is doing a lot of taste testing and trying small swallows. I’d love to have a switch to turn that valve back open but I guess we just have to continue to be patient. The speech therapist still says he is confident she will swallow again.

Dana takes two days a week to be the night nurse but when she got sick on Monday I had a turn. I’m really glad she didn’t just push through it, as she would normally do. She needed the night off! Far too often she lets things fall on her back that don’t need to be there. She can’t be the problem solver for every situation that comes up. There are other hands available and other solutions. She, rightfully so, does what is ultimately best for Chloe though.

Dana had a job interview the other day, at Doernbecher Hospital, in the rehab department. Now I ask you, who would be a better fit in that position? I know, rhetorical question at best. And I’m off to an interview on Thursday for an online newspaper. Maybe we’ll both have an income soon. Then it will be high tech juggling.

A continued thanks to our food helpers. Tim and Kathleen, Barb and Karen have been amazing. They have certainly learned the benefits of giving of themselves. Without them we’d survive, but we can actually have some living moments with them in our world.

Be well,
Ron

  1. 3 Responses to “Sept 4, 2010”

  2. By Lyne Collin, Montreal, QC, Canada on Sep 6, 2010

    All good things come to those who wait….
    Yeah I know…sometimes the wait seems like an eternity…but it’s still worth it !!!
    Chloe you ARE normal sweetie…
    You have physical challenges right now…
    But your classmates i’m positive have other challenges themselves…
    Althought they are not apparent…
    It doesn’t mean they don’t have any…
    You are LUCKY sweetie…
    That you have such a warm loving family around you…they might not…
    So who is to say what is “normal” ???
    Not me for sure !!!

    Much love sent to ALL of you….
    To Chloe…Dana…Colin…and Ron…
    And also to Dave and his wife…
    And to all the people who are on “Team Chloe”
    YES WE CAN !!!!!!!!

    Lyne xoxoxoxo

  3. By ronhorton on Sep 8, 2010

    Thanks Lyne, well put.

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