ChloeWatts.com

Sept 8, 2010

Second day of school and Chloe says she was more interactive then yesterday. So, I guess that means she did a little better. Colin came home pooped but had his homework book completed and was ready to go. Let’s hope this continues!

Chloe’s nights have been getting worse lately. Nurse E has been having trouble getting her to wake up and breath at some points during the night. Her desats have been going to the low 50s which isn’t good. We’re going to try keeping the pulsox machine right by her head tonight to see if the beeping will wake her enough to take a breath. It looks like there is another machine in her near future. We haven’t heard from the sleep clinic yet though.

There has been a lot of discussion about how to get Chloe to outdoor school. It’s over an hour away from the house and there are no accommodations to have the night nurse there. We thought about transporting her back and forth, but Chloe says that is she can’t stay the week and participate in everything then she’d rather not go. Then she added, “another of life’s disappointments.” This is one more example of the newest kind of problem Chloe faces daily. She really isn’t as good as a few out there might think. Compared to post surgery, day one, yes, I’d say things are pretty good. However, if you’re an 11 year old girl who is used to being part of the regular crowd, this situation is not exactly perfect. Then there’s the breathing part now.

I’m trying to convince Dana she needs to give up another night to a night nurse. It’s not what Chloe wants so she is hanging on to that and trying to accommodate her wishes again. She just tries to do it all. She feeds her, cleans up after everybody, does the housework, sets the teen rules and tries to get them to be followed, takes all the phone calls, answers bill questions, sets appointments, fixes everybody’s problems, and still does two nights of no sleep at all. I told her she’s trying to kill herself.

Today she tried to get the MRI, and other doctor visits set up. Of course, no-one calls back right away. In fact, they will probably call tomorrow when she is .. a-way…

Neither of us has heard anything about our job searches yet either. My next interview is tomorrow so here goes. On average there are eight applications a day going someplace. There seem to be plenty of jobs but there are also thousands of people looking for them. It drives me crazy to be put aside because I’m overqualified. That’s just dumb. My choice, right?!

After working on an Ebay seller I was able to order the calculator that Chloe needs for this year’s math, at a good price. Actually, the one that I got for her is a combination calculator that will be able to be used in future classes and it’s upgradeable. Kind of cool. It’s a TI Nspire touchpad if you are curious. She can even hook it up to the computer.

Poor Ivey was a sick pup today. Dana gave her a bone last night and she thinks it didn’t agree with her. I guess the day was filled with little piles of treasures. Just what is needed, more to do…

No appointments for Chloe this week. We decided to give her a break with the first week of school. We’ll start back up next week. I’m sure Chloe will store up some funny antics for Steve and Beth by then. Steve might even have a new assistant by then for her to pick on right out of the gate.

Thanks again to all of you who follow this blog religiously. Some want me to get on a regular schedule for it but it’s just difficult with all that goes on during different days. There really isn’t a daily reportable schedule. So please bear with me on this.

Be well,
Ron