ChloeWatts.com

Tuesday, Oct 5, 2010

Back in school, however, like so many others in the area, Chloe missed a week to the flu. Like she doesn’t have enough on her plate… Colin was also a victim but Dana and I danced around it, thank goodness. Now Chloe has a week of work to make up. The good and bad part is that she will have a free week when her class is at outdoor school. The bad of that is she won’t be at outdoor school. We just couldn’t figure out how to make that happen. It’s a shame as it’s only the 6th grade that gets to go.

Make-a-Wish called again, and again Chloe turned down the trip to visit President Obama. We need to get this swallow awake so she is able to enjoy the entire trip without having to suction all day long and is able to eat without the use of a G-Tube. We asked them to wait, at least, four months before trying again.

The leg brace came last week and Chloe isn’t happy about it in the least. She feels it’s a step backwards, even though we tried to explain that it’s a short term tool to help her regain her walking “normally.” She so wants to fit in as a “normal” 11 year old. She wants that switch to be thrown into the on position so everything will come back right away.

One good tool she really is trying to use is the breathing machine. She does a “treatment” for an hour or so before she goes to bed. It seems to be of great assistance. She sleeps much better at night now and her heart rate has dropped to 91 many times. This is as low as we’ve seen it since December. The pulsox doesn’t beep until around 5:30 or 6:00 when she is in deep rem-sleep and it hasn’t stayed like it was. Dips to 73 are what I saw instead of the 50s that were happening. The goal is to wear it all night though. We don’t want her killing brain cells, now or when she’s in college… if you get my drift.

Firebolt is at the house for two weeks while his regular home is on vacation. Dana says the crickets are so loud she doesn’t know if she’ll get much sleep when she is overnighting with Chloe. The new cage takes up the entire top of her desk now so rearranging is in order for the supplies. BTW, Firebolt is now, Ms. Firebolt after a surprise drop of eggs. Now, if this Bearded Dragon sprouts wings and starts to breath fire we’ll really have something.

Colin is going great guns with his guitar. It’s amazing how many training videos are on the computer for guitar. He is on there daily and putting together quite a few songs. He even started his first band. Although there are only two of them in it right now and there isn’t anything really resembling a band or gigs yet, he has the right mindset.

It was great for me to get away and visit my youngest daughter’s family in NYC. Violet is turning 3 on Halloween. She’s a chatterbox and loads of fun to be around. I can’t wait to get these kids and my five grandkids together someday soon. That will make for an exhausting day for sure.

Time to start the day. Hope all is well with everyone out there. We do so appreciate your support and prayers.

Be well,
Ron