ChloeWatts.com

Oct 18, 2010

It looks like we are all finally cold free and moving toward fall. The air conditioners are out of the windows, the storm windows are in place and the moss is getting taken off the roof today. All that is left is for Chloe to begin swallowing.

We missed speech last week, or rather it felt like it. Chloe was in one of those moods that we probably should have just stayed home. We only get to see Steve once a week so it’s rough when we have a wasted week. OT and PT are on hold at the hospital until we get school work caught up. It’s a children’s hospital so I guess we have to get them to start thinking in terms of School Day Times vs Doctor hours. Things have to happen in the evening there in order for kids to continue to progress in school as well as in health.

Dana and I are still in the hunt for a job that will work well with what our number one job is, making sure Chloe gets better and is cared for the way she needs. For Dana that would mean, ideally, a job that she could work while Chloe is at school. At least that would keep her away from the 10 bazillion phone calls she gets during those hours. It would be nice if all medical calls could be funneled through one entity and then just one call with all the information could be made to the caregivers. Hummm…. there’s an idea.

We have a project at the house that requires a video camera. It can’t be a VHS-C or High 8. Ideally it would be a DVD or Mini DV. If you have one we could borrow for a few days that would be great. It’s not something we will need more than that week so we hate to go buy one just for that.

While the four of us were sitting around the fireplace last night the conversation came up as to how long we have been in this battle. Wouldn’t you know Chloe had the exact timeline. Go figure. When I spoke with my oldest daughter, Kelly, earlier in the day she thought the surgery was in the summer sometime. It’s just unimaginable to think Chloe has not had a meal since December 1st, 2009.

So, once again, thank you for everything and keep posted for the day we can yell, Chloe Swallowed. It won’t be too long from now.

Be well,
Ron