ChloeWatts.com

January 13, 2010

It just feels we are oh so close to getting Chloe’s swallow back. There are no real signs, however, so much else is getting better that I can’t help but believe the swallow is next.

She is walking better, talking better, writing better and is cooking better. She still has terrible nights sleeping due to the apnea, but it’s those two things that need fixin’. If the swallow comes back then I’d have to say the sleep apnea will get better. After all, she can’t even swallow her secretions.

We do have a doctor now that will be able to do the next procedure on her. They will try and get swallowing to occur by injecting her esophagus with botox. This should relax that muscle enough so it will open. This isn’t a permanent fix, but it opens a time frame that we can really work it. That might just rebuild the memories of what needs to happen.

Not a fan, Chloe got her new leg brace. As are all the tools it’s a temporary assistant to help her get the foot going in the right direction and keep the knee from buckling. The redesign even allows for it to fit within her new boots.

Dana and I have been going through our houses with reckless abandon, getting things set up for a couple big sales. We need to trim the households in order to make the inevitable move possible. No, there’s nothing in the works. We just want to get rid of the unnecessary stuff so that when it does happen it will be a lot easier. It’s amazing how much stuff you don’t need in a house when you finally start seriously looking.

Colin is at the opening of his play tonight. We will be going tomorrow to see him. He always does a good job in this. Entertainment really should be his career choice. He’s good at it and there are a lot of different opportunities for him to pursue. It’s obvious he doesn’t want to be a scientist or engineer. Next summer there is a director’s course he may want to take. They offer scholarships.

Dana is still filling all the gaps when the night nurses are sick or have to be called off due to our schedules. For instance, she will be pulling an extra night on Saturday so we can have a family night out. I just wish she was able to sleep during the day. I don’t have a problem with that, but I’ve been programmed as a lifelong musician. We sleep when we need to. I’ll try forcing her out of her added role on Saturday but we’ll see who wins that battle. She’s pretty headstrong sometimes.

Thank you all for keeping the torches burning for us. It is appreciated!

Be well,
Ron