Because We Love Her

January 27, 2011

January 27th, 2011 Posted in Daily News Post

As we approach Chloe’s 12th birthday we all see light, except Chloe. It’s sad to see her go though day after day unable to voice all the major accomplishments she has made. And then, when she doesn’t know I’m looking, I see her in the bathroom, holding on to the towel rack attached to the bathtub mirror, jogging in place. So, although she isn’t letting anyone know, she is trying, and gaining ground daily. She still fights us on a lot of things, but, I don’t think there is one of us who wouldn’t be fighting some of the things she has to endure, in order to, more than endure.

Don’t get me wrong here. Chloe is a openly happy kid a lot of the time. There is just this underlying sadness that she is still going through all this “medical junk” as she calls it.

Chloe turns 12 on Saturday, but don’t tell anyone, she’d say. It will be just a normal day. She doesn’t want visitors or parties or cakes or calls or any of that. It will be a day of her wishes and, hopefully, happy togetherness. Dana has said, we are just postponing the party. We’ll save that day for when she can actually EAT her cake.

On a very good note… last week her PT fired himself. Chloe asked him if he had a treadmill she could try. After seeing her running on the treadmill he was convinced, “You don’t need me anymore.” And this is a guy who loved to see Chloe at every visit! However, she has gained so much strength that he wasn’t doing anything more for her. It’s amazing to see her just pop up off the floor and walk around the room with confidence, even though she bounces off the walls on occasion. Heck, I do that!

Chloe turns 12 on Saturday and if you’d like to help celebrate please do, on your own. Give gratitude for all the advancements she has made over this past long year and include gratitude for what we know will be the next step, swallowing.

Thank you all for everything you have done for this little lady and the family. From the prayer teams, to the food teams to all the helpers, you know who you are. We are winning this battle and you have been our warriors following the commander, Chloe.

We’ll let you know when the party starts.

Be well,
Ron

  1. 5 Responses to “January 27, 2011”

  2. By Kari, Make-A-Wish on Jan 27, 2011

    Happy Birthday Chloe! Hope it’s a wonderful day of celebration!

  3. By Chester on Jan 28, 2011

    you know we celebrate your birth!!!

    Chester

  4. By Lyne Collin, Montreal, QC, Canada on Jan 29, 2011

    Wonderful news about the PT guy !!! Here’s to EVERYONE firing themselves one after the other !!! And NO MORE medical junk !!!

    Love you all !!!

    Lyne xoxoxo

  5. By Kat on Jan 29, 2011

    You know, i totally understand Chloe’s thoughts. She HAS done so much, but for a bright 12 year old, she wants more faster. That’s a good thing. I hold dear in my heart seeing her in Aug. That beautiful smile and the hug, really really warmed my heart. I send you the same warm hug today Chloe, and we call will eat cake when YOU do !! And and chester said, we celebrate your birth. Chloe, you do make others happy and proud, and always know that. Love you kiddo, keep dancing !! {Jogging, dancing, etc}

  6. By Kat on Jan 29, 2011

    BTW, i just saw the pick of you from the day i was talking about. What a beautiful girl you are !!

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