Because We Love Her

March 11, 2011

March 12th, 2011 Posted in Daily News Post

Today signals the anniversary of Chloe’s first day of freedom from the hospital. She was released late in the day of March 10th, 2010. It’s hard to believe it’s been this long. Almost as hard as it is to believe how far Chloe has come from December 2nd, 2009! She still tries to fight us on accepting the fact that she Has come a long way. In her mind she remembers when she was just the “normal kid,” doing everything the other kids could do everyday. We are close but I can understand her feelings. I wouldn’t want to be in her shoes either. Although we know her shoes will be hard to fill by anyone following her.

We had our consult with the doctor who will be doing her botox treatment to get her swallowing to start up again. What better list to be on than… Schindler’s List. He’s going to free up her esophagus!

Today we are all watching Japan and sending prayers to all the people affected by the quake. Such a shame to see things like that. The only good part is that it wasn’t a manmade atrocity this time.

After a lot of persuading, Chloe went to a play with her Block Class. Interestingly enough she was so worried about bring attention on herself, that she did. Some of the dodas running the door gave her grief about bringing her suction machine backpack into the play. It took some convincing that no-body would die because it was in there. I love it how people make things up to support their own stories. As it turned out she had a good time and now will probably have an easier time at OMSI and the next play.

Be well,
Ron

  1. 4 Responses to “March 11, 2011”

  2. By Karen on Mar 12, 2011

    Happy Anniversary to all of you! The hospital was hard on everyone I know.

    Chloe, you are soooo close now. Who would’a thought Botox would be the ticket? I think of it as something for superficial reasons, but it has just been redeemed in my mind!

    Blessings to all…

  3. By Chester on Mar 12, 2011

    Chloe,

    Thanks Ron for keeping us up to speed on all that is happening in your lives. Chester and I know how much change and progress has occurred this year from last and see Chloe as she soon will see herself! Happy Anniversary to you all…a bit of celebrating is well deserved!!!

    Chester

  4. By Barb Jones on Mar 15, 2011

    Hi everyone – I’ve been thinking about Chloe lately and finally got on here to get updates. I was up at Robt Gray today and am pretty sure I saw Chloe. She had walked out of a room with an adult, and I took a double take of the adult, thinking maybe it was Dana, but it wasn’t. So then I wasn’t sure it was Chloe. By the time everything registered, they were leaving the building. Anyway, I hope you are all doing well and finding happiness and peace in each day. Much love!

    Barb Jones (Teacher Barb)

  5. By ronhorton on Mar 17, 2011

    Yup Barb, that was Chloe and her CNA helper. They have become good friends and we sure do appreciate her help!

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