Because We Love Her

Monday, Aug 4th:

August 4th, 2008 Posted in Daily News Post

Chloe was interested in writing this for herself …….until she got sidetracked on unwrapping a small snow cone machine.   

Well there you go.  It’s all about the food, folks! 

We have great news.  We, (Dave, I , Chloe) saw a dietician today at Legacy Emmanuel Hospital and her recommendation after seeing the numbers and Chloe’s appearance and food journal was a match.  “Chloe, I think you are doing great!!!”    

Keep in mind Chloe checked into the hospital at a weight of 38lbs.  Today, she weighed in at 52.8.  Perhaps this is the last time we’ll put a number to this, as it means nothing without seeing such a physical energy change.   

With results like this we were informed to reduce the additional feeds, (cans of food put through her nose tube), to just 8 hours (at night).  This is a reduction by 1/2.  She is on her way. Another appt is going to be set up with her regular physician in 2 weeks to take the next step. 

Chloe painted her toenails gold tonight and her fingernails silver.  hum………… 

There is still such sadness surrounding the death of Grandpa Nick, (Chloe called her best friend today and told me later, “she gets it” regarding the loss), and I would suspect there will be an unfolding of this for some time.  I do acknowledge and am grateful for a moment we had last night as I searched for a phone message for Colin and I came across a long phone message from Grandpa Nick…for Colin on his birthday.  Nick sang happy birthday to Colin, as was his tradition for all of us on our special day.  It was so happily sent with joy and his usual…give everyone hugs/tell them I love them and make sure they reciprocate.  Colin said to me as we bawled…Lets save it for all our birthdays!!”  Of course! 

When we went to our dietician appt today, we, on purpose found Dr Norwood, (per Chloe), and he came out and spoke to her for several minutes.  His first reaction was “Wow, you look good, you’ve gained weight haven’t you?”  They have a special bond.  She didn’t quite have the gumption to tell him of his new nickname, per her,  Dr Tonguewood.  (see photo gallery please…..I think he has a strawberry in hand and this is a good day on Chloe’s behalf, while in hospital . He is the type of Doc to do a silly thing for his patients’ sake.  Yes, Some docs really ARE the bomb) 

I know we were asked today more than once, what are you doing this summer?  Any trips planned?  I guess summer tried to slip away.  We have just begun to know it and this is okay in light of what we lived.  I know we appreciate sun more than we did before.  I know we value love more than we did.  Perhaps we don’t know what lies ahead, if we ever did.  A trip?  Sure………..we took one, not one we wanted to but one we learned from.    

Today, Chloe decided to put her experience into a research system.  She told Dr Norwood” I don’t want anyone to go through what I did, especially the pain”.  Today, she became the future of children who WON’T have to brave what she did.  She is registered into the Pacific Northwest Oncology Research system and the National system.  We could be contacted in the future for details of her diagnosis and treatment.  She had a complex recovery, which still remains a mystery to medical science in some regards.   

Who knows a hero?  You do.  And her name is????? 

Love from The Mama, Dana

(Chloe proofed this for me and ok’d it all)

  1. 170 Responses to “Monday, Aug 4th:”

  2. By Kat on Aug 5, 2008

    I am so proud of you Chloe for your strength and wisdom. You’re Mom and Dad did a wonderful job in teaching you and Colin about life and love. You make us all stronger in our beliefs kiddo, and I, for one, appreciate it, and you, so very much. Thank you !!

    To the entire Watts Family,
    I send deepest sympathy for your loss of Nick. I know he was special to you all and i saw how much he cared and loved each of you. Another Angel to keep watch over those he loved.

    Always and more,
    Kathy~

  3. By Grandma Lee on Aug 5, 2008

    You Go Girl. Wow What good news. When your dad called me yesterday with your good news I wanted to shout it to the world. I knew that God was taking good care of you because he loves you so much. (even more than I love you and thats huge.) I agree with Kat; your mom and dad Did raise you and Colin to be wonderful people. I like to think I added a hug or two in there too.
    I know how great you must feel after such a long time of not knowing if you ate if it would stay down. We will have to plan a special vacation next summer to celebrate YOU. So be thinkin about what that vacation will look like. I love you sweet girl. I’ll talk to you soon.

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